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RQ 4. Improve the diagnostic pathway for Salivary Gland Cancer (SGC) patients

The problems of diagnosis for salivary gland cancers begins with primary care (including dental care).

Most salivary gland cancers are not referred through the gold standard pathway.

Current guidance misses important presenting symptoms.

Workstream Lead

Dr Sam Rack

Workstream members

For expressions of interest, or any other questions about this workstream please contact [email protected]

Patient survey

As part of the research undertaken in RQ4 a patient survey is being conducted. It opened in April 2026. Please do read below and share widely with you clinical and patient networks. If you are a patient then please consider taking part if you've been diagnosed with a salivary gland cancer in the UK.

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Have you been diagnosed with salivary gland cancer in the UK?

We are inviting individuals to take part in a short survey to help improve understanding of how salivary gland cancer presents and is diagnosed in the UK.

This survey is open to individuals who:

Have been diagnosed with salivary gland cancer — this includes salivary gland–type cancers (such as adenoid cystic carcinoma) that originated in other sites, such as the breast or lungs.
Underwent diagnostic care within the UK

The survey takes approximately 15 minutes to complete.

All responses are completely anonymous. Your responses will help us better understand the symptoms patients experience and the pathways to diagnosis, with the aim of improving early detection and patient care.

If you’re eligible and willing to share your experience, please consider taking part: https://forms.cloud.microsoft/e/5VK0jU9u6u

Thank you for sharing your experience and helping improve our understanding of these conditions.

Please share this survey to spread the word! It's also posted on Instagram, Facebook, X and LinkedIn.