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Our Events .

Our 2019 networking events are in London in May and in Glasgow in November.

These will be all day events, held at the weekend so as many of you can come as possible. It’s completely free to attend.

The events are for those with Adenoid Cystic Carcinoma, and other salivary gland cancers, their family, friends and supporters, as well as clinicians and researchers working in this area.

The day will include a support session where people can share experiences, as well as informative presentations on anything from the latest research to new treatments.  We’ll also be providing you with lunch and refreshments throughout the day – which will give you the chance to talk one-to-one with other SGC UK members.

To get regular updates about this and other events, join our network or watch this space for further details. (A small number of travel bursaries are available to help with the cost of attending.)

Saturday May 18th 2019 - London, England gathering

Our last event was in London, England on Saturday May 18th 2019. 

We met in Angel, just 10 minutes from Euston and Kings Cross train stations. 

After introductions and a chance to chat with others, we shared a light lunch before presentations from Dr Metcalf and Jeff Kaufman on the latest research into ACC.  It was fantastic to see so many people there.  Check out our Facebook page for pictures from the day.

Want to come along to future events?  Email [email protected] to let us know and Join our network to get updates in the future.


Our next gathering: Saturday November 2nd 2019, Glasgow, Scotland gathering

We will be meeting on Saturday November 2nd 2019 in Finnieston Quay between 10am and around 4.30pm.

The day will start with an opportunity to hear all our stories, followed by lunch provided by us.

The afternoon is a chance to hear the latest research updates from the UK, from Dr Robert Metcalf and internationally, from Jeff Kaufman of the ACCRF.  

One additional session on radiotherapy is to be confirmed.

Please email [email protected] if you would like to attend.

 


Saturday 17th November 2018 - York, England gathering

On November 17th 2018, more than 50 people living with Adenoid Cystic Carcinoma and their supporters gathered in York for SGC UK’s network meeting.

In the morning, we held a support session. Those living with ACC and their family and friends all had the chance to talk openly about their experiences.

For many, it was the first time they had met anyone else with ACC. They discussed everything from their diagnosis and treatment journeys, to their struggles finding expert advice about this rare cancer, and how they were dealing with its physical and psychological effects. Over lunch, there was more time for everyone to share information and stories.

In the afternoon, the meeting heard from two expert speakers, and everyone had the chance to ask them questions.

Dr Rob Metcalf, Clinical Medical Oncologist and researcher talked about his work at the Christie Hospital, Manchester. He explained how his research into ACC is looking at how the disease can be tackled in two ways. Firstly, by stimulating the immune system to attack it, and secondly, by targeting the faulty genes that drive the cancer.

Our second speaker, who joined us by Skype from the US, was Jeff Kaufman of the ACCRF (Adenoid Cystic Carcinoma Research Foundation).  He gave us an overview of some of the research being done into ACC across the globe.  His presentation can be found here.

Want to attend our next meeting? Join our network for updates.