Salivary Gland Cancer UK
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  • Our Stories
    • Allison D's story
    • Dawn's story
    • Jade's story
    • Christine's story
    • Ruth's story
    • Wendy's story
    • Barry's story
    • Ian's story
    • Sarah's story
    • Liz's story
    • Kamla's story
    • Alison's story
    • Shane's story
    • Alison C's story
  • Mind & Body
    • Managing anxiety with Dr Elaine Mayon-White
    • How can I best support my mother?
    • Seeing friends has triggered my anxiety
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    • All about the Salivary Glands
    • How do I manage a visual disturbance during a panic attack?
    • Kemi shares her advice for supporting a loved one with cancer
    • Dawn's tips for someone close to someone with Salivary Gland Cancer
    • Top tips for radiotherapy treatment from our network member Dawn
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    • UK Salivary Gland Cancer Research Working Group
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Working for those with rare salivary gland cancers.

Adenoid Cystic Carcinoma
Acinic Cell Carcinoma
Secretory Carcinoma
Mucoepidermoid Carcinoma
Adenocarcinoma, NOS

Our Events

Our 2024 networking events or 'gatherings' will be hybrid so you can attend in person or virtually using 'zoom' - next event is Saturday March 23rd in Manchester, UK.

Grants

28 Oct 2023

Apply for research funding. We welcome all applications that are aligned with our strategy.

Dawn's tips for someone close to someone with Salivary Gland Cancer

Dawn share her suggestions for someone close to someone with Salivary Gland Cancer in this short video

Gene profiling or tumour profiling or genomic testing

What is gene profiling and how can it help you? Where and how do you go to get it done?

What are salivary gland cancers?

Salivary Gland Cancers are a rare group of cancers. They represent less than 5% of all head and neck malignancies and can also present in other areas of the body, including the windpipe and the vulva.

Allison D's story

Allison shares the story of her diagnosis of ACC while she was pregnant in 2011.

Dawn's story

Dawn shares her story of being diagnosed with unknown carcinoma in her left sublingual gland

Donate tissue to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

What we do

Shane Draper, Salivary Gland Cancer UK Trustee, talks about how SGC UK is growing, our 8 aims and our work for patients

Kemi shares her advice for supporting a loved one with cancer

Kemi Olaiya (SGC UK's Treasurer) shares her advice for supporting a loved one with cancer

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Treatment Options
Our Stories
Mind & Body
Get Involved
about 4 days ago Cancer can feel all-consuming... But whenever you can, remind yourself that this is simply a part of your journey, but it's not the entire thing. #HeadCancerAwareness #MouthCancerAwareness #ThroatCancer #ThroatCancerAwareness #MouthCancer @SGCancerUK
about 4 days ago UK Salivary Gland Cancer Research Working Group
about 8 days ago In this YouTube video, Dr Rob Metcalf explains exactly what he does as a Salivary Gland Cancer Researcher. #HeadAndNeckCancerSupport #HeadAndNeck #HeadAndNeckPathology #HeadCancer #NeckCancer #NeckCancerAwareness @SGCancerUK
about 9 days ago If you'd like to do a fundraiser for SGCUK, please let us know as we'd love to help you! We are able to send free SGCUK t-shirts and other appropriate items to support your efforts. Just get in touch: [email protected] *Thank you to Lucy Crownshaw for the lovely images from the Sheffield 10K for #TeamMolly #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers #HeadAndNeckCancer @SGCancerUK
about 11 days ago Alison Torrens, a former art teacher with salivary gland cancer, has donated her biological samples for medical research to Queen’s University Belfast, and has also left a gift in her will to help fund the research. #RareDiseaseCommunity #RareDiseaseWarrior #RareDiseaseAdvocate #RareDiseaseSurvivor #RareDisease @SGCancerUK
about 13 days ago Today is International Men's Day. International Men's Day is a great opportunity to thank all of the men in the SGCUK community for being valuable, appreciated members of our movement to raise awareness and educate about salivary gland cancer. #InternationalMensDay #CancerSupportGroups #CancerFighter #CancerSurvivors #ACC #SGG #Pathology @SGCancerUK
about 17 days ago November is Mouth Cancer Action Month, and today is Blue Wednesday! Blue Wednesday encourages everyone to regularly do quick and simple checks for the early warning signs of mouth cancer. Whilst Mouth Cancer Action Month aims to raise awareness about mouth cancer. Be sure to share this post to help spread the word about these life-saving checks. #MouthCancerActionMonth #BlueWednesday #BlueLipSelfie #HeadCancerAwareness #MouthCancerAwareness #ThroatCancer #ThroatCancerAwareness #MouthCancer @SGCancerUK
about 18 days ago Have you checked out Kamla's salivary gland cancer story yet? Kamla, and her daughter Kiran, share the story of Kamla's diagnosis and treatment, of carbon ion therapy in Germany. #CancerSupportCommunity #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #CancerCharity @SGCancerUK
about 20 days ago Beacons London Rare Disease Showcase is on the 27th of November, will you be attending? Beacons Rare Disease Events are specifically curated to prompt meaningful discussion, reflection and powerful action. They'll be opportunities to network and meet with others affected by rare diseases, along with the ability to listen to talks by leading healthcare professionals. Beacon for Rare Diseases #BeaconsLondonRareDiseaseShowcase #RareCancerResearch #RareCancerAwareness #RareCancers #RareCancer @SGCancerUK
about 24 days ago Today is the 11th International Day of Radiology (IDoR). International Day of Radiology is an opportunity to celebrate the important role of medical imaging in healthcare—especially within cancer detection and diagnosis. It's also a great chance to say a huge thank you to all healthcare professionals, especially those who work in radiology! #InternationalDayOfRadiology #Radiology #HeadAndNeckCancer #HardPalateCancer #HeadAndNeckCancerAwareness #HeadAndNeckCancers @SGCancerUK
about 25 days ago In September, hundreds of runners at the Sheffield 10k were adorned in our t-shirts! 😊 SGCUK's very own Dr Rob Metcalf and Emma Kinloch ran, along with hundreds of #TeamMolly It was such an honour to see the turnout and how many people were taking the time out of their busy lives to raise awareness and donations for salivary gland cancer research and treatment. Thank you so much to all who took part (either running or donating). We appreciate you! 💜 *And a huge thank you to Anina Atkinson and Lucy Crownshaw for the wonderful images. #SalivaryGlandCancerAwareness #RareCancerAwareness #CancerAwarenessCommunity #HeadAndNeckCancerAwareness #RareDiseaseAwareness @SGCancerUK
about 28 days ago Thank you to everyone who attended our October gathering in London. It was such a pleasure to see some regular faces along with some new ones! Don't forget to sign up for our newsletter if you'd like to be kept in the loop for our next free hybrid (in-person and online) salivary gland cancer meet-up. #RareDiseaseAdvocacy #UKCharity #CancerSupport #CancerSupportNetwork #HardPalateCancer @SGCancerUK
about a month ago On Saturday the 9th of September, we had the lovely pleasure of being featured on Sky Sports! Charlotte Acton, Anderson Johnson, Harri Kyle, and Jordan Ellis walked 35 miles to all 7 premier league stadiums in London to raise awareness for Salivary Gland Cancer in support of Molly Midgley. Thank you #TeamMolly 😊 Molly Midgley-Hellend #SalivaryGlandCancer #RareCancerResearch #CancerAwareness #HeadAndNeckCancer #RareDiseases @SGCancerUK
about a month ago Did you know that watery eyes can be a warning sign of adenoid cystic carcinoma? Check out this article by MD Anderson Cancer Center to learn more. #SalivaryGlandCancerAwareness #RareCancerAwareness #CancerAwarenessCommunity #HeadAndNeckCancerAwareness #RareDiseaseAwareness @SGCancerUK
about a month ago Salivary gland cancer can occur in the Bartholin's gland, although it is extremely rare. Here is a recent case report of adenoid cystic carcinoma (ACC) that was located in Bartholin’s gland. #BartholinGland #BartholinGlandCancer #RareDiseaseCommunity #CharityUK #CancerSupportCommunity #Genomics @SGCancerUK
about a month ago Cynthia DeMarco wrote a great article for MD Anderson, called 'Cancer of the hard palate: 8 things to know'. Have you read it yet? MD Anderson Cancer Center #MDAnderson #MDAndersonCancerCenter #CancerSurvivors #ACC #SGG #OralHealth #OralHealthCare @SGCancerUK
about a month ago Meet Dr Rob Metcalf in this YouTube video! Dr Rob Metcalf is SGC UK's Medical Oncologist and Founder. His clinical and research focus is on salivary gland cancer. He sees patients from across the UK, most of whom have adenoid cystic carcinoma. The overall aim of his clinical and research practice is to develop new therapies for these patients. #OralHealthEducation #OralHealthAwareness #OralHealthMatters #OralHealthEducator #MouthHealth @SGCancerUK
about a month ago There are over 20 types of salivary gland cancers. Salivary gland cancer can occur in the major and minor salivary glands, but they can also happen in other secretory glands around the body, including the vulva and breast. In this image you can see the trachea which is one of areas where saliva and mucous pass through. Salivary gland cancers occur in the trachea as well as the three main salivary glands. There is no age, sex or lifestyle link to salivary gland cancers which can make diagnosis all the more difficult. For more information on salivary glands and cancer please click the link in our bio and visit our website. #CancerAwarenessCampaign #HeadAndNeckCancerSurvivor #RareDiseaseWarrior #CancerCharity #CancerSupportGroup @SGCancerUK
about a month ago Have you caught up with Alison C's story? She shares her symptoms and how she was diagnosed, along with her journey of treatment. #NeckCancer #NeckCancerAwareness #ThroatCancer #ThroatCancerAwareness #MouthCancer @SGCancerUK
about 2 months ago Sometimes when you're going through treatment and recovering from salivary gland cancer you have to reframe what being productive means. Not only can treatment wipe you out, but your body needs all the energy it can get to help you heal. Give yourself permission to rest and relax whenever you need to. #HeadAndNeckCancers #RareDiseaseAdvocate #RareDiseaseSurvivor #CancerFundraiser #CancerSupportServices @SGCancerUK
about 2 months ago Today is World Sight Day. World Sight Day draws awareness to eye health, blindness, and vision impairment. Did you know that your eyes and vision can hold signs of salivary gland cancer? Salivary gland cancers can occur in the lacrimal gland. Symptoms such as swollen eyes and blurred vision can be warning signs signalling the presence of salivary gland cancer. Much in the same way that visiting the dentist can help you to detect symptoms, visiting the optometrist regularly can also help you to detect warning signs. #WorldSightDay #CharityFundraisers #SalivaryGlandCancerUK #RareCancers #ACCWarrior #HeadAndNeckCancerSupport @SGCancerUK
about 2 months ago Today is World Mental Health Day. This is your reminder that you're not alone. If you're struggling, you have a community to lean on. #WorldMentalHealthDay #MentalHealthDay #RareDisease #CancerCommunity #CancerSupportGroups #CancerFighter @SGCancerUK
about 2 months ago David Boden celebrates one year of being free of adenoid cystic carcinoma by treating himself to a unique number plate... David Boden #CancerFree #AdenoidCysticCarcinoma #ACC #FightingCancer #CancerSurvivors @SGCancerUK
about 2 months ago There are only a few days to go until our gathering, will you be joining us in person or virtually? You can catch up with the agenda for our gathering on our website. If you want to share stories and meet patients, clinicians, researchers, and caregivers, this is the event for you. You'll hear from our guest experts about international research updates and more. #HeadAndNeck #HeadAndNeckPathology #MouthCancerAwareness #HeadCancer #HeadCancerAwareness @SGCancerUK
about 2 months ago If you're new to our community, welcome. It's great to have you with us in our little corner of the internet! You can check out this video on our YouTube channel to find out more about who we are, what we do, and how you can support us. And if you've got any questions? Don't hesitate to send us a DM. #OralHealthEducation #OralHealthAwareness #OralHealthMatters #OralHealthEducator #MouthHealth @SGCancerUK
about 2 months ago Remind yourself of 3 things that you're grateful for today. #CancerSurvivors #ACC #SGG #OralHealth #OralHealthCare @SGCancerUK
about 2 months ago This image shows how the ducts drain the saliva from each of the glands. The submandibular glands produce 70% of the saliva in the mouth. They are located on both sides, low in the jaw towards the back of the mouth. Saliva is carried via the submandibular duct (called Warhitin’s duct) entering the floor of the mouth under the front of the tongue. The largest salivary gland - the parotid gland - produces a watery saliva that helps with digestion and mouth lubrication. The Stenson duct drains saliva from the parotid gland into the mouth around the upper cheeks. #SubmandibularGlands #RareDisease #RareDiseaseResearch #CancerCommunity #CancerSupportGroups #CancerFighter @SGCancerUK
about 2 months ago Have you checked out Wendy's Story on our website and YouTube channel? Wendy talks about her journey with inoperable cancer, and how the Salivary Gland Cancer UK gatherings have helped her and her husband process her diagnosis. #CharityFundraisers #SalivaryGlandCancerUK #RareCancers #ACCWarrior #HeadAndNeckCancerSupport @SGCancerUK
about 2 months ago Today it's World Cancer Research Day! World Cancer Research Day #WorldCancerResearch #WorldCancerResearchDay #SalivaryGland #RareCancer #GenomicsEngland #LivingWithCancer @SGCancerUK
about 2 months ago Hello everyone! Our next gathering is now just over two weeks away on Sat Oct 7th - exciting. Via zoom and in person in central London. Don't forget to let us know if you're joining us - DM or email. All details on our website and in the events page and all are welcome. See you there 😀 @SGCancerUK

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hello@salivaryglandcancer.uk

Salivary Gland Cancer UK, International House, 36-38 Cornhill, London EC3V 3NG

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Salivary Gland Cancer UK is a registered charity number 1182762.