Salivary Gland Cancer UK
Donate
  • Home
  • About Us
    • What we do
    • Board of Directors
    • Supporters, collaborators and memberships
    • Research
    • Partnership and collaborative work
  • Treatment Options
    • Diagnosis
    • Surgery
    • Radiotherapy
    • Drug Therapies
    • More about salivary gland cancers
    • Clinical Trials
    • Radiofrequency ablation (RFA)
    • Drug Therapies - Immunotherapy
    • Gene profiling or tumour profiling or genomic testing
  • Our Stories
    • Christine's story
    • Allison D's story
    • Ruth's story
    • Wendy's story
    • Barry's story
    • Ian's story
    • Sarah's story
    • Liz's story
    • Kamla's story
    • Alison's story
    • Jade's story
    • Shane's story
    • Alison C's story
  • Mind & Body
    • Managing anxiety with Dr Elaine Mayon-White
    • How can I best support my mother?
    • Seeing friends has triggered my anxiety
    • Exercise for the head, neck and shoulder area
    • All about the Salivary Glands
    • How do I manage a visual disturbance during a panic attack?
  • Get Involved
    • Join Our Network
    • Donate to the Biobank
    • Our Events
    • Donate and help our work
    • Patient – Researcher Trial Discussions
    • Podcasts and Videos
Join Our Network Add to Biobank Our Events Donate

Working for those with rare salivary gland cancers.

Adenoid Cystic Carcinoma
Acinic Cell Carcinoma
Secretory Carcinoma
Mucoepidermoid Carcinoma
Adenocarcinoma, NOS

Jade's story

Jade, diagnosed at 27 with Acinic Cell Carcinoma when she was pregnant, shares her story.

Our Events

Our 2023 networking events or 'gatherings' will be hybrid or virtual

Gene profiling or tumour profiling or genomic testing

What is gene profiling and how can it help you? Where and how do you go to get it done?

What we do

Emma Kinloch, Salivary Gland Cancer UK founder, on what we do.

Allison D's story

Allison shares the story of her diagnosis of ACC while she was pregnant in 2011.

More about salivary gland cancers

These are a rare group of cancers. They represent less than 5% of all head and neck malignancies and can also present in other areas of the body, including the windpipe and the vulva.

Shane's story

After losing his right eye due to Adenoid Cystic Carcinoma, Shane talks about he has adjusted to the loss.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Podcasts and Videos

Our podcasts and videos are created from recordings made at our events which allows us to capture all the points and questions raised by patients and carers at the meeting.

Treatment Options
Our Stories
Mind & Body
Get Involved
about a day ago Practicing gratitude and appreciation can help to relieve stress and make you feel calm, even in times of great chaos. Close your eyes. Take three deep breaths, and consider three things that you're truly grateful for today. #RareCancer #GenomicsEngland #LivingWithCancer #HeadAndNeckCancers @SGCancerUK
about a day ago Gratitude and appreciation can help relieve stress and make you feel calm, even in times of great chaos. Great words from a great man @OliverSacks #Livingwithcancer #LWBC #headandneckcancer #rarecancer #hnc #Neurology @SGCancerUK
about 3 days ago Community is so important during the journey of salivary gland cancer—whether that's friends, family, or the wider community of those who are on the same journey as you. At Salivary Gland Cancer UK we have tirelessly worked to create a welcoming community that supports patients, their supporters and caregivers, and clinicians along this unique shared journey. If you'd like to join our network you can sign up via our website to get updates on the latest gathering events and research. #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #HeadAndNeckCancerSurvivor #RareDiseaseWarrior #CancerCharity #CancerSupportGroup #SalivaryGland #CharityFundraiser @SGCancerUK
about 3 days ago Community is so important during the journey of #salivaryglandcancer-whether that's friends, family, or a wider group of people going through the same thing. We work tirelessly to provide a supportive community. Join us? tinyurl.com/5fn7tbpm #CancerSupport #RareDisease @SGCancerUK
about 6 days ago It isn't selfish to practice self-care, it's an act of self-love. Close your eyes, take a breath, and ask yourself what YOU need today. #SalivaryGlandCancerAwareness #RareCancerAwareness #CancerAwarenessCommunity #HeadAndNeckCancerAwareness @SGCancerUK
about 7 days ago Reported in the @ASCO Clinical Journal of Oncology 'Phase II Clinical Trial of Axitinib and Avelumab in Patients With Recurrent/Metastatic #AdenoidCysticCarcinoma' showed a signal of efficacy...further evaluation is warranted tinyurl.com/yc5m58z6 #CancerResearch @SGCancerUK
about 8 days ago Today it is the National Day Of Reflection. The National Day Of Reflection is organised by Marie Curie which is the UK's leading end of life charity. The National Day Of Reflection is an opportunity to remember and pay respect to those who have died, and to support those who are grieving the loss of someone special. It is a time for communities to come together to celebrate the lives of those we have been blessed to be a part of. You can participate with a minutes silence at noon. #NationalDayOfReflection #DayOfReflection #SalivaryGlandCancer #RareCancerResearch @SGCancerUK
about 8 days ago Today it is the #NationalDayOfReflection, organised by @mariecurieuk . An opportunity to remember & pay respect to those we have lost. A time for communities to come together to celebrate those lives. We think of you all #DayOfReflection #SalivaryGlandCancer #RareCancerResearch @SGCancerUK
about 11 days ago Fantastic to see Renata Ferrarotto presenting on #adenoidcysticcarcinoma at @myESMO #SarcomaAndRareCancer23 👏. You can see our latest poster here too 👇@ERN_EURACAN #rarecancer #adenoidcysticcarcinoma #RareDisease @SGCancerUK
about 11 days ago Today it is World Oral Health Day. Looking after your oral health and being aware of any unusual changes can be extremely helpful in detecting mouth and salivary gland cancers. #WorldOralHealthDay #WorldOralHealth #OralHealth #OralHealthCare @SGCancerUK
about 11 days ago Today it is #WorldOralHealth Day. Look after your oral health and be aware of any changes - it could get you diagnosed earlier & helps with #cancertreatment recovery. #WorldOralHealthDay #WorldOralHealth #OralHealth #OralHealthCare #headandneckcancer #HNC @SGCancerUK
about 14 days ago March is National Nutrition Month. Nutrition plays a key role in good health and fitness, and is vital for good mental health. For many cancer patients eating can be difficult, so making sure you are eating the right things is even more important. How can you be a little more mindful of your nutrition this month? Is there anything that you need more of, or less of, in your diet? #NationalNutritionMonth #NationalNutrition #SLT #Nutrition #LWBC @SGCancerUK
about 16 days ago Fantastic opportunity for those with special interest in #deeplearning , computation #pathology, or medical imaging. Develop #ArtificialIntelligence algorithms for profiling a multicenter #salivaryglandcancer dataset. Know anyone? Please share widely 👇🙏#adenoidcysticcarcinoma twitter.com/sakhurram/stat… @SGCancerUK
about 16 days ago Shane shares his top tips from his journey with #ACC in the hope that they might help you too. You can check out Shane's full story on our website. #SalivaryGlandCancer #EyeSurgery #EyeRemovalSurgery #LivingWithCancer @SGCancerUK
about 18 days ago This week it is Healthcare Science Week. Healthcare science week is an annual week of celebration for the variety of careers in healthcare science. Science and technology are vital in salivary gland cancer patient care, improving treatment outcomes, and changing lives for the better. Today we thank all of those working in healthcare science and encourage more young people to choose this wonderfully rewarding career option to help save lives. How can you show your gratitude to those working in healthcare science today? #CancerFighter #CancerSurvivors #ACC #SGC @SGCancerUK
about 18 days ago #HealthcareScienceWeek celebrates the variety of careers in healthcare science. Vital to #cancerpatient care, improving treatment outcomes & changing lives for the better. Thank you all - you are appreciated. 👏🙏 #CancerFighter #CancerSurvivors #ACC #SGC @SGCancerUK
about 19 days ago From our friends at @accrf_org 👇 twitter.com/accrf_org/stat… @SGCancerUK
about 21 days ago Salivary Gland Cancer UK has identified its 8 aims through patient-clinician co-production. Our fourth aim is to optimise the pathways of diagnosis for salivary gland cancers. #UKCharity #CancerSupport #CancerSupportNetwork #CoProduction @SGCancerUK
about 21 days ago #salivaryglandcancer patients often suffer delays in #diagnosis. No identified risk factors & few symptoms, mean advanced tumours & poor patient outcomes. Our 4th aim is to change this👇 #UKCharity #CancerSupport #adenoidcysticcarcinoma #CancerSupportNetwork #CoProduction @SGCancerUK
about 24 days ago There are over 20 types of salivary gland cancers. Salivary gland cancer can occur in the major and minor salivary glands, but they can also happen in other secretory glands around the body, including the vulva and breast. In this image you can see the trachea which is one of areas where saliva and mucous pass through. Salivary gland cancers occur in the trachea as well as the three main salivary glands. There is no age, sex or lifestyle link to salivary gland cancers which can make diagnosis all the more difficult. For more information on salivary glands and cancer please click the link in our bio and visit our website. #CancerSupportServices #CharityFundraisers #SalivaryGlandCancerUK @SGCancerUK
about 27 days ago You can check out Shane's story on our website. He shares some inspiring gems from his journey with ACC (adenoid cystic carcinoma). #ACC #SGC #EyeSurgery #EyeRemovalSurgery #LivingWithCancer @SGCancerUK
about 29 days ago No matter what you go through, trust with full faith that you have the resilience to be strong and that you will always adapt. #SalivaryGlandCancerAwareness #RareCancerAwareness #CancerAwarenessCommunity #HeadAndNeckCancerAwareness #RareDiseaseAwareness #RareDiseaseCommunity #CharityUK #CancerSupportCommunity #Pathology @SGCancerUK
about a month ago 👇 @SGCancerUK
about a month ago Today we are supporting #RareDiseaseDay. Did you know that: - 1 in 5 cancers are rare cancers? - The 5-year survival rate is lower for patients with a rare cancer than for those diagnosed with a more common cancer. - There are an estimated 200 rare cancers. #RareDiseaseDay #RareDisease #SalivaryGlandCancer #RareCancerResearch #CancerAwareness #HeadAndNeckCancer #RareDiseases #RareDiseaseAdvocacy #UKCharity #CancerSupport #CancerSupportNetwork @SGCancerUK
about a month ago Today is #RareDiseaseDay. 1 in 5 cancers are rare cancers & the 5-year survival rate is lower for patients with a rare cancer than for those with a more common cancer. This needs to change. #showyourstripes #RareDisease #SalivaryGlandCancer #RareCancerResearch #CancerAwareness @SGCancerUK
about a month ago For #salivaryglandcancer patients with no approved #chemo or #precisionmedicine treatments, #radiotherapy is key. More funding could = more resources, greater patient access & better outcomes. Yes please 🙏#adenoidcysticcarcinoma #particletherapy #NCRI_CTRad #radonc twitter.com/radiotherapy_u… @SGCancerUK
about a month ago March is Walk All Over Cancer month. Can you walk 10,000 steps a day during March to help raise funds for cancer research, treatment, and prevention? Walking is great for your health, helps to pull communities together, and this specific event is helping to raise funding for a terrific cause. Will you be joining #WalkAllOverCancerMonth ? #WalkAllOverCancer #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #HeadAndNeckCancerSurvivor #RareDiseaseWarrior #CancerCharity #CancerSupportGroup #SalivaryGland #CharityFundraiser @SGCancerUK
about a month ago This image shows how the ducts drain the saliva from each of the glands. The submandibular glands produce 70% of the the saliva in the mouth. They are located on both sides, low in the jaw towards the back of the mouth. Saliva is carried via the submandibular duct (called Warhitin’s duct) entering the floor of the mouth under the front of the tongue. The largest salivary gland- the parotid gland- produces a watery saliva that helps with digestion and mouth lubrication. The Stenson duct drains saliva from the parotid gland into the mouth around the upper cheeks. #SalivaryGlands #CancerAwareness #SalivaryGlandCancer #ACC #RareCancer #GenomicsEngland #LivingWithCancer #HeadAndNeckCancers #RareDiseaseAdvocate #RareDiseaseSurvivor #CancerFundraiser #CancerSupportServices #CharityFundraisers #SalivaryGlandCancerUK @SGCancerUK
about a month ago This week it is Cancer Prevention Action Week. Cancer Prevention Action Week is an annual event to raise awareness of cancer and cancer prevention. During this week we encourage you to take action to support the movement however you can. Can you please share this post to your Instagram stories in support? Did you know that around 1,100 people are diagnosed with cancer every day in the UK, but that 40% of all cancer cases could be prevented? Making small and consistent beneficial changes in our lives can help to reduce the risk of cancer, and can help to support treatment plans. #CancerPreventionActionWeek #CancerPreventionAction #SalivaryGlandCancer #RareCancerResearch #CancerAwareness #HeadAndNeckCancer #RareDiseases #RareDiseaseAdvocacy #UKCharity #CancerSupport #CancerSupportNetwork @SGCancerUK
about a month ago Welcome to #CancerPreventionActionWeek, raising awareness of #cancer & #cancerprevention. Harder when no risk factors have been identified, but important as 40% of cancers could be prevented. #HeadandNeckCancer #RareCancerResearch #SalivaryGlandCancer #AdenoidCysticCarcinoma #ACC @SGCancerUK

Contact Us

hello@salivaryglandcancer.uk

Salivary Gland Cancer UK, International House, 24 Holborn Viaduct, London EC1A 2BN

Terms & Conditions Cookies Privacy Policy

Salivary Gland Cancer UK is a registered charity number 1182762.