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Alison C's story

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Alison C's story

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In this short video Alison shares her story with us

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about a day ago With Fathers Day coming on the 18th June, don't forget that you can donate at no extra cost to yourself through EasyFundraising whilst shopping! #FathersDay #Shopping #Donate #RareDiseaseAdvocacy #UKCharity @SGCancerUK

about a day ago Just submitted our feedback 🙏twitter.com/RCSLT/status/1… @SGCancerUK

about a day ago Today it it Thank You Day! Thank You Day is a day to celebrate all the things that keep us connected in our networks and communities. It gives you an opportunity to say ‘thank you’ to each other, and to enjoy each other's time, support, and friendship. #ThankYouDay #ThankYou #HeadAndNeck #HeadAndNeckPathology #MouthCancerAwareness @SGCancerUK

about 2 days ago Did you know that you can be a huge help to improve treatment outcomes and further research into salivary gland cancer by donating your tumour to the biobank? salivaryglandcancer.uk/get-involved/d… #RareCancer #GenomicsEngland #HeadAndNeckCancers @SGCancerUK

about 2 days ago Did you know that you can be a huge help to improve treatment outcomes and further research into salivary gland cancer by donating your tumour to the biobank. Dr Rob Metcalf is building a national biobank of adenoid cystic carcinoma and other salivary gland cancer tumour tissue at the Christie Hospital in Manchester. Not only will you be contributing to research and treatment of salivary gland cancer but your tumour can be profiled too. This reveals unique characteristics of your disease at a molecular level. In turn, this can help doctors understand which treatments are most likely to deliver the best results for you. This is sometimes referred to as targeted therapy or personalised medicine. #RareCancer #GenomicsEngland #LivingWithCancer #HeadAndNeckCancers #RareDiseaseAdvocate #RareDiseaseSurvivor #CancerFundraiser #CancerSupportServices #CharityFundraisers #SalivaryGlandCancerUK @SGCancerUK

about 4 days ago @RobLMetcalf is building a national biobank of #ACC and other #SGC tumour tissue. If you donate, not only will you be contributing to the research and treatment of cancer but your tumour can be profiled too. salivaryglandcancer.uk/get-involved/d… @SGCancerUK

about 4 days ago If you want to receive updates about treatments and be the first to hear about our upcoming events, then sign up to our network community. Visit our website to register and join. #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #HeadAndNeckCancerSurvivor #RareDiseaseWarrior #CancerCharity #CancerSupportGroup #SalivaryGland #CharityFundraiser @SGCancerUK

about 4 days ago mdanderson.org/cancerwise/can… #adenoidcysticcarcinoma twitter.com/SGCancerUK/sta… @SGCancerUK

about 5 days ago Study by The Institute of Cancer Research, researches a test that can personalise use of immunotherapy and chemotherapy for head and neck cancers. icr.ac.uk/news-archive/t… @SGCancerUK

about 5 days ago Do you struggle with anxiety, stress, and overwhelm? Breathwork and mindfulness meditation are great tools, but not everyone finds them easy! You can find lots of helpful videos on YouTube. #Anxiety #Stress #Overwhelm #Breathwork @SGCancerUK

about 7 days ago Do you struggle with anxiety, stress, and overwhelm? Breathwork and mindfulness meditation are great tools, but not everyone finds them easy! If you're a beginner or experienced practitioner, you can find lots of helpful videos on YouTube to do a guided practice. A guided practice with an experienced teacher helps you to stay focused during the practice. Plus they'll provide lots of handy tips to help you too. #Anxiety #Stress #Overwhelm #Breathwork #MindfulnessMeditation @SGCancerUK

about 8 days ago Check out this really helpful article by @MDAndersonNews on the 8 things to know about cancer of the hard palate. #MDAndersonCancerCentre #HardPalateCancer #ACC @SGCancerUK

about 9 days ago Check out this really helpful article by MD Anderson Cancer Center on the 8 things to know about cancer of the hard palate! #RareDiseaseAdvocacy #UKCharity #CancerSupport #CancerSupportNetwork #AdenoidCysticCarcinoma @SGCancerUK

about 10 days ago Research into cancer and tumours is vital to improve prevention and treatment outcomes. Support the biobank in Manchester helps us to advance progress for salivary gland cancer independent.co.uk/news/health/sc… @SGCancerUK

about 11 days ago In 2020 it was reported that new salivary gland organs called ‘tubarial glands’ have been discovered in the nasopharynx by researchers in the Netherlands. The nasopharynx is the upper part of the throat behind the nose. #SalivaryGlands #Nasopharynx @SGCancerUK

about 11 days ago Great session 👍👏 thank you. And a pleasure as always to catch u@swallowsgroup #OPC23 twitter.com/swallowsgroup/… @SGCancerUK

about 11 days ago In 2020 it was reported that new salivary gland organs called ‘tubarial glands’ have been discovered in the nasopharynx by researchers in the Netherlands. The nasopharynx is the upper part of the throat behind the nose. An opening on each side of the nasopharynx leads into the ear (eustachian tubes). It is 2-3cm wide by 3-4cm long. The nasopharynx contains adenoidal fluid to fight infection and also provides a major drainage path for lymphatic fluids, draining into the throat, nose or ears. Torus tubarius - or eustachian cushion - is a mucous ridge in the nasopharynx behind the auditory (eustachian) tube. The new mucous gland tissue with draining ducts were found over the torus tuberous hence the name tubarial glands. Could sparing these glands during radiotherapy enhance patients' quality of life after treatment? #MouthCancerAwareness #HeadCancer #HeadCancerAwareness #NeckCancer #NeckCancerAwareness @SGCancerUK

about 12 days ago Scientists continue to explore the understanding of cancer in animals to help improve screening for humans. theguardian.com/society/2023/a… #CancerUK #CancerResearch #CancerPrevention @SGCancerUK

about 14 days ago Have you checked out Christine's story? She shares her diagnosis, treatment, and how she lives with cancer. This is a gentle reminder, that you are note alone! You can find her story on our website. salivaryglandcancer.uk/our-stories/ch… #RareDisease @SGCancerUK

about 14 days ago Have you checked out Christine's story? She shares her diagnosis, treatment, and how she lives with cancer. This is a gentle reminder, that you are note alone! You can find her story on our website. #OralHealthEducator #MouthHealth #HeadAndNeck #HeadAndNeckPathology #AdenoidCysticCarcinoma @SGCancerUK

about 15 days ago Check out this helpful Q&A with Dr Elaine Mayon-White, who is a Counselling Psychologist, as she answers the question; ‘How can I best support my mother?’ salivaryglandcancer.uk/mind-body/how-… #CancerSupport @SGCancerUK

about 16 days ago Little reminder of how strong you can be, even if it doesn't always feel like it! #Bravery #Brave #Courage #Courageous #RareCancers #ACCWarrior #HeadAndNeckCancerSupport #RareDisease #RareDiseaseResearch #CancerCommunity #CancerSupportGroups #CancerFighter @SGCancerUK

about 16 days ago Little reminder of how strong you can be, even if it doesn't always feel like it! #Bravery #Brave #Courage #Courageous #RareCancers @SGCancerUK

about 18 days ago Our sixth aim is to understand the effectiveness of different types of radiotherapy for specific salivary gland cancers. #CoProduction #SalivaryGlandCancer #CancerUK #RareDiseases #RareDiseaseAdvocacy #SGCUK #MedicalPhysics #RadiationTherapy #RadOnc #HeavyIon #CarbonIon @SGCancerUK

about 18 days ago Salivary Gland Cancer UK has identified its 8 aims through patient-clinician co-production. Our sixth aim is to understand the effectiveness of different types of radiotherapy for specific salivary gland cancers. #MedicalPhysics #RadiationTherapy #RadOnc #HeavyIon #CarbonIon @SGCancerUK

about 18 days ago Are you ready to share your story? Sharing your story can be an extremely cathartic and healing experience, not only for you but for other patients, those in recovery, and caregivers too. #RareCancers #ACCWarrior #HeadAndNeckCancerSupport #RareDisease #CancerCommunity @SGCancerUK

about 19 days ago Family of Sheffield woman raising awareness of her rare and incurable cancer yorkshirebylines.co.uk/region/family-… Thank you so much 👏🙏 @SGCancerUK

about 22 days ago Today we are celebrating International Nurses Day and giving thanks to all the wonderful nurses that support the public and private healthcare sectors all around the world! Your work is appreciated more than you could know. International Nurses Day is held on May the 12th, which is the anniversary of Florence Nightingale's birth. Florence Nightingale is commonly known as the founder of modern nursing. #InternationalNursesDay #NursesDay #FlorenceNightingale #RareCancer #GenomicsEngland @SGCancerUK

about 22 days ago Today we are celebrating International Nurses Day and giving thanks to all the wonderful nurses that support the public and private healthcare sectors around the world! Your work is appreciated more than you could know. @UK_BAHNON #InternationalNursesDay #NursesDay @SGCancerUK

about 23 days ago If you want to receive updates about treatments and be the first to hear about our upcoming events, then sign up to our network community. Visit our website to register and join. #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #HeadAndNeckCancerSurvivor @SGCancerUK

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