Donate

Home
About Us
Treatment Options
Our Stories
Mind & Body
Get Involved

Join Our Network Add to Biobank Our Events Donate

Back

Alison C's story

Home /
Our Stories /
Alison C's story

Share this article

In this short video Alison shares her story with us

Treatment Options

Our Stories

Mind & Body

Get Involved

about 2 hours ago We bet your favourite brands work with EasyFundraising. This means your online shopping can provide Salivary Gland Cancer UK with much-needed funding and support—without you having to do anything! Over 8,000 brands will give us free donations when you buy something. Sign up now to support us, and we’ll get a £7.50 bonus donation for every new supporter who signs up for EasyFundraising. #EasyFundraising #CancerSupportCommunity #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #CancerCharity @SGCancerUK

about 3 days ago At Salivary Gland Cancer UK, we have 8 core aims that define our mission and overall strategy. The first aim of SGCUK is to build support and information networks to: a. Bring together those living with salivary gland cancers, giving them access to the latest information on their disease, and mutual support networks. b. Raise awareness of salivary gland cancers, their symptoms and treatments amongst the general public and the clinical community. c. Bring together the patient, clinical and research communities to help drive forward research and improvements in treatments. 🌟 Join us in our mission to raise awareness, support research, and provide resources for those affected by this rare cancer. Together, let's make a difference. #SalivaryGlandCancerAwareness #RareCancerAwareness #CancerAwarenessCommunity #HeadAndNeckCancerAwareness #RareDiseaseAwareness #Pathology @SGCancerUK

about 5 days ago Don't miss out on this podcast during which Emma discusses how the patient representatives from EURACAN contributed to the set-up and development of a patient registry for adult rare cancers. You'll learn about what registries are, why we need them and why patient involvement is crucial to their longevity. Euracan EURORDIS-Rare Diseases Europe #EURACAN #EURORDIS #SalivaryGlandCancer #CancerAwareness #CancerSupport #CancerSupportNetwork @SGCancerUK

about 7 days ago 🎗️ Join us in raising awareness for Oral, Head and Neck Cancer Awareness Week! 🎗️ Throughout this week, you can: 🔍 Learn: Take the time to educate yourself about the signs and symptoms of oral, head, and neck cancers. Early detection can save lives. 🗣️ Share: Use your voice to spread awareness on social media, among friends, and in your community. Every conversation matters. 🤝 Support: Show your support for those affected by these cancers by volunteering, donating, or participating in fundraising events. Together, we can make a difference for patients living with oral, head, and neck cancers. Let's raise awareness, support survivors, and advocate for better treatments and outcomes. #OHANCAW #HeadAndNeckCancerAwareness #SalivaryGlandCancer #ACC #AdenoidCysticCarcinoma #AcinicCellCarcinoma @SGCancerUK

about 9 days ago 🔬 Help us in our work to improve research and salivary gland cancer treatments. Did you know that donating your tumour to the biobank can help to make a significant impact on research efforts? Donating your tumour can help scientists better understand salivary gland cancer and develop more effective treatments. If you're able to join us in advancing the research and treatment against this rare form of cancer, we would really appreciate it. You can find more details on our website. Don't hesitate to reach out if you have any questions. #DonateYourTumor #ResearchForACure #SalivaryGlandCancer #RareCancerResearch #RareDiseases #RareDiseaseAdvocacy @SGCancerUK

about 12 days ago 🌟 Thank you to everyone who joined us for our gathering in March, in support of salivary gland cancer awareness and research! 🌟 Your presence, support, and contributions mean the world to us. Together, we're making a difference in the lives of those affected by this rare form of cancer. From the bottom of our hearts, we want to extend our deepest gratitude to all the attendees, volunteers, donors, and sponsors who make events like these possible. Your generosity and commitment to our cause inspire us to continue fighting for better treatments and a brighter future for those living with salivary gland cancer. Through events like these, we're raising awareness and fostering a sense of community. We're spreading hope and showing solidarity with patients and their loved ones. Thank you once again for your incredible support. It really does make a meaningful difference 🙏 You can catch up on our highlights video from the event in March on our YouTube channel now. #SalivaryGlandCancer #CancerAwareness #EndSGCancer #SGC #SGCUK #SalivaryGlandCancerUK @SGCancerUK

about 14 days ago 🌟 We are immensely grateful to every person who has shared their journey of living with salivary gland cancer. Your stories not only inspire others—but also remind us that no one is alone. Together, we're creating a supportive community where everyone feels heard and understood. Let's continue to spread hope and encouragement by sharing our stories. If you haven't seen this already, you can catch up with Allison D's story on our YouTube channel. #SalivaryGlandCancerStories #CommunitySupport #SGCAwareness #SupportSalivaryGlandCancerPatients #Cure4SGC @SGCancerUK

about 19 days ago 💙 Uniting for a Cause! In April we have Frances Robinson and Jo Lewis running in marathons to support us! Frances is running the #BrightonMarathon on April 7th and Jo is running the #LondonMarathon on April 21st. We wish them both lots of luck! If you feel called to, Salivary Gland Cancer UK can help you run a fundraising event by supplying merchandise such as SGCUK t-shirts. By organising a fundraiser, you're not just raising funds; you're building a network of support, solidarity, and hope for those affected by salivary gland cancer. Together, we can provide critical resources for research, treatment, and patient support. Your participation can truly make a difference. Let's continue to rally our communities together to make a real impact. Don't hesitate to reach out if you have questions or need support Brighton Marathon Weekend #CommunitySupport #RaiseHope #FundraiserForACause #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers @SGCancerUK

about 20 days ago We can't believe it! It's officially our 5th birthday today 🥹 Time flies, and we really couldn't have done it without everyone who has contributed to our mission and community. A huge thank you to everyone who has come to one of our events, has shared their story, or contributed their professional knowledge, and for everyone who has shared with us their most valuable resource—time. With your support, we look forward to continuing our mission and meeting the 8 aims of SGC-UK. #SalivaryGlandCancer #CancerAwareness #CancerSupport #CancerSupportNetwork #SalivaryGlandCancerAwareness @SGCancerUK

about 23 days ago Have you checked out our YouTube video by Dr Sam Rack? He talks about molecular profiling in salivary gland cancer. You'll find lots of interesting resources on our YouTube channel, categorised into helpful playlists. Be sure to check them out! #HeadAndNeckCancerSupport #HeadAndNeck #HeadAndNeckPathology #MouthCancerAwareness #HeadCancer @SGCancerUK

about 26 days ago Jocelyn Moodley from South Africa, shares her journey with salivary gland cancer with Oncology Buddies. She had extensive surgery for ACC and has since gone on to become a wonderful beacon of inspiration for others experiencing cancer. #RareDiseaseCommunity #RareDiseaseWarrior #RareCancer #RareDiseaseAdvocate #RareDiseaseSurvivor @SGCancerUK

about 28 days ago On our YouTube channel, Dr Elaine Mayon-White talks about how to cope with social anxiety after diagnosis and treatment for a salivary gland cancer. You'll find a variety of helpful videos for patients, carers, clinicians, and researchers on our channel—so make sure you're subscribed. #CancerSupportGroups #CancerFighter #CancerSurvivors #ACC #SGG #Pathology @SGCancerUK

about 29 days ago UK Salivary Gland Cancer Research Working Group

about a month ago Alison C shares her salivary gland cancer journey and her experience of diagnosis. If you're feeling inspired by her story, perhaps you might consider sharing your story with others too. If you're keen to contribute to our salivary gland cancer community, simply contact us via our website. #CancerSupportServices #SalivaryGlandCancerUK #ACCWarrior #CancerAwarenessCommunity #CancerCommunity @SGCancerUK

about a month ago Today is World Oral Health Day! Oral hygiene is important to help prevent head and neck cancer, along with helping to increase the chances of early diagnosis. "A new international study published in the Journal of the National Cancer Institute has revealed strong associations between oral health and survival among people diagnosed with head and neck cancer. Better oral health was associated with increased survival. Those who had more frequent dental visits were more likely to have their cancer diagnosed at an earlier, and less deadly, stage of the disease than those who had few or no dental visits". #WorldOralHealthDay #OralHealth #OralHealthCare #OralHealthEducation #OralHealthAwareness #OralHealthMatters @SGCancerUK

about a month ago It is National Nutrition Month. Good nutrition is a vital part of overall wellbeing. However, adequate nutrition during the process of cancer treatment can be tricky! This is a reminder to take each day as it comes. Don't judge yourself for what you are (or aren't) eating. And remember that you're doing your very best. #NationalNutritionMonth #CancerSupportGroup #SalivaryGland #GenomicsEngland #LivingWithCancer #CancerFundraiser @SGCancerUK

about a month ago Salivary gland cancers are most often found in the head and neck. But salivary gland-type cancers can also begin in secretory glandular tissue across the body, including in the Bartholin’s glands, which are found in the vulva. There are two Bartholin’s glands. Situated towards the bottom of the vulva, they sit just behind the lips that surround the lower entrance to the vagina. About the size of a pea, they are filled with fluid that travels through a duct to lubricate the vagina during sex. Around 10-15% of cancers in the Bartholin's gland are caused by the salivary gland cancer, Adenoid Cystic Carcinoma. Cancer of the Bartholin’s gland is rare, and is regularly mistaken for the much more common – and benign – condition, the Bartholin’s gland cyst. Although salivary gland-type cancer in the Bartholin’s gland can initially be asymptomatic, ongoing symptoms can include a palpable painful lump on one or both sides of the bottom of the opening to the vagina, a burning sensation or skin lesions and ulcerations in that area. @vulvalcancerukawareness Lichen Sclerosus & Vulval Cancer UK Awareness #VulvalCancer #BartholinsGland #SquamousCellCarcinoma #AdenoidCysticCarcinoma #Genomics #CancerCharity @SGCancerUK

about a month ago Today is the first day of the ESMO Sarcoma and Rare Cancers Annual Congress in Switzerland. The event provides a unique occasion for "specialised physicians, oncologists, scientists, industry representatives, patient advocates and nurses, from all around the world, to connect, and share their knowledge, experience, and research for the advancement of the treatment of sarcoma and rare cancers". ESMO - European Society for Medical Oncology #ESMOSarcomaAndRareCancers24 #RareCancerResearch #RareDiseases #RareDiseaseAdvocacy #RareCancerAwareness #RareDiseaseAwareness @SGCancerUK

about a month ago Today is National No Smoking Day. National No Smoking Day is an important reminder of the risks of smoking and the benefits of quitting. If you, or someone you know, need support in quitting then visit the NHS website for resources to help. Tobacco use is not a risk factor for salivary gland cancers, but it is for many others. #NationalNoSmokingDay #QuitSmoking #HeadCancerAwareness #NeckCancer #ThroatCancer #ThroatCancerAwareness #MouthCancer @SGCancerUK

about a month ago This week is Healthcare Science Week! Healthcare Science Week allows us to celebrate the role of the NHS in the diagnosis, prevention and treatment of diseases, such as salivary gland cancer. It also allows us to share inspiration and support the scientific workforce for their future goals—such as improved treatment outcomes. A huge thank you to all NHS workers, we appreciate you and all that you do! The Christie NHS Foundation Trust #HealthcareScienceWeek #SalivaryGlandCancer #CancerAwareness #CancerSupport #CancerSupportNetwork #SalivaryGlandCancerAwareness @SGCancerUK

about a month ago In this article, cancer survivor Arun Lal shares his experience of adenoid cystic carcinoma (ACC) and his tips on staying positive during the process of diagnosis and treatment. #RareCancers #RareDisease #RareDiseaseResearch #ArunLal #ACC #AdenoidCysticCarcinoma @SGCancerUK

about a month ago Are you supporting our YouTube channel? If you are finding it valuable, we'd appreciate you subscribing! In our video, Review Of Real World Outcomes With Lenvatinib In ACC, Clinical Research Fellow, Dr Laura Feeney, talks about her review of real-world outcomes with Lenvatinib in recurrent/Metastatic Adenoid Cystic Carcinoma ('ACC'). If you haven't seen it already, go and check it out, it's very educational. #RareDiseaseCommunity #RareDiseaseWarrior #RareCancer #RareDiseaseAdvocate #RareDiseaseSurvivor @SGCancerUK

about 2 months ago The reality of living with cancer is that it often comes with a creative variety of negative, intrusive, self-deprecating, and unwanted thoughts. If you've experienced these types of thoughts—you're not alone. We vouch for the power of our gatherings because you can share and talk with people who 'get it'. This is also your reminder that you haven't failed and you're not weak because you have experienced living with, or are living with cancer. Cancer does not discriminate, unfortunately, anyone can be diagnosed with it. Our next gathering is in a few days, on the 9th of March. You can join in person in Manchester or virtually online. Simply email to register and attend: [email protected] You are not alone, you have a community at SGC-UK to support you. #CancerSupportGroup #SalivaryGland #GenomicsEngland #LivingWithCancer #CancerFundraiser @SGCancerUK

about 2 months ago A promising clinical trial at the Royal Marsden has followed the journey of a patient with mucoepidermoid carcinoma (MEC) who went from palliative care to tumour eradication—with no sign of recurrence 15 months on. The Royal Marsden NHS #CancerSupportServices #SalivaryGlandCancerUK #ACCWarrior #CancerAwarenessCommunity #CancerCommunity @SGCancerUK

about 2 months ago Today is Rare Disease Day! Rare Disease Day focuses on raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare Disease Day ✅ Ready to show your support for those suffering with rare diseases? Simply share this post now. #RareDiseaseDay #RareCancerResearch #RareDiseases #RareDiseaseAdvocacy #RareCancerAwareness #RareDiseaseAwareness @SGCancerUK

about 2 months ago Often when we think about things that we are grateful for, we look externally: inspirational and caring friends, loving family, nourishing food, a safe home, furry companions. Rarely do we look within. This is your reminder; You are special. ❓ What are you grateful for about yourself? ❓ And in what ways are you proud of yourself? ❓ What unique qualities do you love about yourself? #CancerSupportCommunity #AdenoidCysticCarcinoma #Genomics #CancerAwarenessCampaign #CancerCharity @SGCancerUK

about 2 months ago Here are some tips on how to care for your emotional health: ✅ Write down and journal how you're feeling without judging yourself or filtering how you truly feel ✅ Confide in trusted people such as friends, family members, your doctor, or mental health professionals with your feelings—it's good to talk ✅ Make a list of things you can feel grateful for ✅ Create a safe space to allow yourself to cry and vent when you need to—don't bottle things up ✅ Practice mindfulness, meditation and relaxation techniques to help soothe and regulate your nervous system #SalivaryGlandCancer #CancerAwareness #CancerSupport #CancerSupportNetwork #SalivaryGlandCancerAwareness @SGCancerUK

about 2 months ago Have you checked out our YouTube channel and subscribed yet? We have a variety of educational and inspirational videos to help support your journey with cancer (or caretaking for someone with cancer). Go and watch it now if you haven't already. What other helpful videos would you like us to create for you? Leave a comment to let us know, or send us a DM. #RareCancerResearch #RareDiseases #RareDiseaseAdvocacy #RareCancerAwareness #RareDiseaseAwareness @SGCancerUK

about 2 months ago This week is Cancer Prevention Action Week. CPAW encourages you to make healthy choices a habit! Their annual campaign focuses on: ✅ Ways that you can raise awareness and make a difference ✅ Reducing your cancer risk through healthy habits ✅ Helping your friends and family through education and cancer awareness Are you ready to support CPAW? Why not share this post now? World Cancer Research Fund #CancerPreventionActionWeek #CancerPrevention #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers @SGCancerUK

about 2 months ago Today is Random Acts Of Kindness Day. Whenever you plant a seed of kindness—it grows and multiplies. Kindness is compelling and heart-opening. This is an invitation to be as kind as you can today, whether that's to yourself, or to others. #RandomActsOfKindnessDay #BeKind #RandomActsOfKindness #UKCharity #CharityUK #CharityFundraiser #CharityFundraisers @SGCancerUK

Contact Us

hello@salivaryglandcancer.uk

Salivary Gland Cancer UK, International House, 36-38 Cornhill, London EC3V 3NG

Terms & Conditions Cookies Privacy Policy

Salivary Gland Cancer UK is a registered charity number 1182762.