Salivary Gland Cancer UK
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      • The Late Effects of Radiotherapy Treatment with Emma Hallam, Consultant Therapeutic Radiographer
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      • Top tips for radiotherapy treatment from our network member Dawn
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    • Major Salivary Glands - Parotid, Sublingual and Submandibular
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  • Salivary Gland Cancer Science - Research Updates
    • Salivary gland cancer: new classifications and diagnostic challenges
    • Association of quality of life with mortality in patients with adenoid cystic carcinoma using an internationally-validated QoL questionnaire (EQ-5D-5L)
    • Tracheal Adenoid Cystic Carcinoma: why studying it matters - and how biobanks help
    • New study examining disruption of oncogenic pathways in mucoepidermoid carcinoma (MEC)
    • New study reveals late recurrence and low survival rate of adenoid cystic carcinoma of the breast
    • New study using real-world UK data supports the use of HER2-directed therapies for HER2-positive salivary gland cancers
  • UK Salivary Gland Cancer Research Working Group (UKSGCRWG)
    • Research Working Group Members
    • RQ 1. Address the utility of Guidelines for Salivary Gland Cancers (SGC)
    • RQ 2. Assess the variation in histopathology reporting for Salivary Gland Cancers (SGC)
    • RQ 3. Standardise the decision-making processes for patients who have technically operable, Salivary Gland Cancer (SGC), where the surgery carries high morbidity
    • RQ 4. Improve the diagnostic pathway for Salivary Gland Cancer (SGC) patients
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Radiotherapy Treatment and Late Effects

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  • Radiotherapy Treatment and Late Effects

The Late Effects of Radiotherapy Treatment with Emma Hallam, Consultant Therapeutic Radiographer

30 Dec 2024

Here you will hear about the late effects of radiotherapy treatment and what you can do about them

What is Radiation Induced Fibrosis? And How To Reduce Its Effects

30 Dec 2024

Here you will hear about radiation induced fibrosis and how to reduce its effects

Tips for Salivary Gland Cancer Patients Living with Radiotherapy Late Effects

30 Dec 2024

Here you will hear some tips for living with radiotherapy late effects

Top tips for radiotherapy treatment from our network member Dawn

Dawn share her top tips for radiotherapy treatment

Salivary Gland Cancers
Our Stories
Patient and Carer Support
Support SGC UK (and get involved)
about 13 hours ago Research saves lives. By donating tumour tissue to the Biobank at The Christie, you can help researchers better understand SGC and improve future treatment options. This vital step can also help with personal gene profiling to improve your own treatment outcome. Find out more here: #TumourTissue #CancerResearch #Biobank #GeneProfiling #SGCUK @SGCancerUK
about 5 days ago Spotlight on a Rare Cancer: Hyalinising Clear Cell Carcinoma Did you know there are over 20 types of salivary gland cancer? Today, we're putting the spotlight on Clear Cell Carcinoma (CCC). CCC is a rare and typically non-aggressive salivary gland cancer that often appears as a slow-growing, painless lump in the minor salivary glands of the mouth, like in the lips or cheeks. It affects slightly more women than men, usually between the ages of 40 and 80. A key to diagnosing CCC is genetic analysis, as researchers have found that most cases have a specific gene fusion. The main treatment is surgery, and the long-term outlook is generally good with a low chance of the tumour returning. By understanding the different types of salivary gland cancer, we can help raise awareness and support for the en#cancerawareness #ClearCellCarcinoma #CCC #SalivaryGlandCancer #RareCancer #CancerAwareness @SGCancerUK
about 7 days ago We've officially launched our new TikTok channel! Follow us for short, engaging videos that break down complex topics, share quick well-being tips, and give you a peek behind the scenes. Come say hi and join our growing community there! #SGConTikTok #TikTokLaunch #CancerEducation #SGCUK #NewChannel @SGCancerUK
about 12 days ago "It's about finding strength in the face of the unknown." We hear this so often from patients. Hearing personal stories reminds us we are not alone. If you feel comfortable, please share a part of your journey in the comments or send us a message. Your experience can inspire and help others. #SGCStory #PatientVoices #Community #CancerSupport #YouAreNotAlone @SGCancerUK
about 13 days ago What a day we had on Saturday - The first ever Salivary Gland Cancer Awareness Day was held at Manchester Art Gallery including patients and clincians coming together to share their stories, experiences, research, hopes and plans for the future. - Thanks to everyone who came, those who supported, all those who shared on social media.... we are so excited to see where this bright beginning takes us. #sgcday #SalivaryGlandCancerDay @SGCancerUK
about 14 days ago What an incredible day at The Big Half! A huge thank you to every single one of our runners who took on the 13.1-mile course. Your determination and hard work have raised vital funds that will directly support our mission. Feeling inspired? There are so many ways you can get involved and make a difference. Check out our website for upcoming events and opportunities to join our team of fundraising heroes! #TheBigHalf #Fundraising #CharityRunner #SGCUK #JoinTheTeam @SGCancerUK
about 17 days ago Thank you to everyone who joined us in making this day a success! This is a marathon, not a sprint. Together, we are building a stronger, more informed, and more supportive community. Let's keep the momentum going and keep pushing forwards. #OneCommunityOneCause #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 17 days ago Our eighth and final core aim is to support the development of standard drug treatments for salivary gland cancers to improve life expectancy and survivorship. We are doing this by: ✔️Supporting basic research into the biology of individual salivary gland cancers. ✔️Supporting translational research that turns this basic knowledge into effective treatments. ✔️Developing and pushing forward drug trials to test the effectiveness of both existing drugs and those specifically developed to target a particular salivary gland cancer. This work is at the heart of our mission to find better ways to treat these rare cancers and improve patient outcomes. #SalivaryGlandCancerUK #CancerTreatment #DrugTrials #Research #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 17 days ago Our seventh core aim is to support the development of surgical and radiotherapy treatments to deliver improved survivorship and quality-of-life post-treatment for salivary gland cancer patients. We are focused on: ✔️Improving the treatments themselves, aiming for higher success rates and fewer long-term side effects. ✔️Enhancing post-treatment life, helping patients not just survive, but thrive, with a better quality of life. This is about more than just fighting cancer; it's about rebuilding lives. #SalivaryGlandCancerUK #SurgicalTreatment #QualityOfLife #Survivorship #SGCDay #SalivaryGlandCancerDay #LWBC @SGCancerUK
about 17 days ago Our sixth core aim is to understand the effectiveness of different types of radiotherapy for specific salivary gland cancers. We are dedicated to: ✔️Gathering data and insights on how various radiotherapy techniques impact patient outcomes. ✔️Working with researchers and clinicians to identify the most effective and least toxic treatments for each type of salivary gland cancer. This work is crucial for optimising care and improving long-term health. #SalivaryGlandCancerUK #Radiotherapy #CancerResearch #BetterTreatment #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 17 days ago Our fifth core aim is to support the development of standardised guidelines for the management and surveillance of individual salivary gland cancers. With these being rare cancers, guidelines can vary. We're helping to: ✔️Ensure consistent, high-quality care across the country. ✔️Provide clear protocols for managing these cancers, from initial treatment to long-term follow-up. Standardised care ensures that every patient gets the best possible support, no matter where they are. #SalivaryGlandCancerUK #ClinicalGuidelines #BestPractice #Healthcare #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 17 days ago A massive thank you to all those have joined us today at the Manchester Art Gallery today for the Inaugural Salivary Gland Cancer Day. We have just enjoyed a lovely lunch and networking and now back to it for the afternoon session featuring more patients and clinicians. #onecommunityonecause #sgcday #salivaryglandcancerday @SGCancerUK
about 17 days ago Our fourth core aim is to optimise the pathways to diagnosis. Navigating the healthcare system can be complex and stressful. We are working to: ✔️Improve the efficiency and speed of the diagnostic process for salivary gland cancers. ✔️Support patients as they move through different stages of diagnosis, from initial consultation to receiving a definitive answer. A smooth and swift pathway to diagnosis can make a world of difference. #SalivaryGlandCancerUK #PatientCare #DiagnosisPathway #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 17 days ago Our third core aim is to improve the rate of early diagnosis for salivary gland cancers. The sooner a cancer is found, the more treatment options are available. We're committed to: ✔️Educating the public on the signs and symptoms of salivary gland cancers so they know when to seek medical advice. ✔️Working with healthcare professionals to ensure these rare cancers are on their radar for timely diagnosis. Early diagnosis saves lives. Help us spread#primarycare #SalivaryGlandCancerUK #EarlyDiagnosis #HealthAwareness #SGCDay #SalivaryGlandCancerDay #PrimaryCare @SGCancerUK
about 17 days ago Our second core aim is to support those living with and beyond salivary gland cancer. We are dedicated to: ✔️Understanding the Experience: We want to build a deeper understanding of what it’s like to live with and beyond these cancers, including the physical and emotional challenges. ✔️Improving Lives: We support the development of interventions and resources to improve the quality of life for patients and their families. Your experience matters. We're here to listen, learn, and advocate for better care. #SalivaryGlandCancerUK #LifeAfterCancer #PatientSupport #CancerJourney #SGCDay #SalivaryGlandCancerDay #LWBC @SGCancerUK
about 17 days ago It's #SalivaryGlandCancer Day! Our first core aim is all about connection! We're building vital support and information networks to bring together everyone affected by salivary gland cancers. This means: ✔️Connecting Patients: Providing access to the latest information and a mutual support network so no one has to face their journey alone. ✔️Raising Awareness: We aim to educate both the public and the clinical community on the symptoms and treatments of these rare cancers. ✔️Driving Research: We bring together patients, clinicians, and researchers to push for better diagnosis, improved treatments, and brighter futures. Together, we can create a stronger, more informed community. Follow us and share to help us achieve our mission! #SalivaryGlandCancerUK #RareCancer #Community #CancerAwareness #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 17 days ago Today is World Salivary Gland Cancer Awareness Day! There are more than 20 types of this cancer, and because they are so rare, diagnosis is often poor and treatment is limited. This is why our work is so vital. Help us raise a global voice today by sharing this post. #WorldSGCAwarenessDay #SalivaryGlandCancer #RareCancerAwareness #SGCUK #Unite #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 18 days ago Understanding the Anatomy of Salivary Gland Cancers. Did you know there are 23 types of SGC, and they can arise in salivary and secretory glands all over the body? Our new video is a must-watch guide to the anatomy of this rare disease, covering: ➡️ Major and minor salivary glands, lacrimal gland (eye), Bartholin’s gland (vulva), trachea, breast, and skin. ➡️ Impact of Treatment: The surrounding nerves (optic, trigeminal) and bone structures (maxilla, mandible) affected by essential treatments. We've dedicated growing resources on our website to explain the anatomy of these complex sites. Knowledge is power - watch the video and use our resources to get informed! #SalivaryGlandCancerDay #SGCResearch #RareCancer #Anatomy #MedicalEducation #SGCDay @SGCancerUK
about 19 days ago More Than 23 Reasons to Raise Awareness. These rare cancers can occur in salivary glands or other secretory glands like the breast, vulva, skin, or lacrimal gland. Because they are so rare and varied, and poorly understood, they require specialised care and expert knowledge. If you or someone you know has been affected, you understand the challenge of early diagnosis - signs are often missed or non-existent. By coming together as #OneCommunity, we can: ✅ Ensure more people are informed and supported. ✅ Empower patients with the latest information. ✅ Connect clinicians and researchers to drive better treatments. Join us and explore the growing resources on our website! #SalivaryGlandCancer #RareCancerAwareness #SGCUK #KnowTheSigns #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 20 days ago The Fight Against Salivary Gland Cancer Knows No Borders! 🌍 SGC is rare, but our community can be vast and powerful. To ensure our message reaches every corner of the world, we've created supporter images and translated our key awareness post into multiple international languages. Because rare cancer advocacy requires worldwide collaboration, we need you to help spread the word in your community, in your language. Watch this video, then visit our shareable resources to download and share the translated post! If we haven't done your language yet... let us know! Let's make this a truly international day of awareness. #GlobalHealth #RareCancer #OneCommunityOneCause #SGC #SGCDay #SalivaryGlandCancerDay @SGCancerUK
about 28 days ago Ever wondered how you taste your favourite foods? It's not just your tongue! Your sense of smell does most of the work, and for patients with salivary gland cancer, treatments can have a big impact on this amazing system. 💙 Here's why: Saliva: It's a key ingredient in tasting! Saliva helps food molecules reach your taste buds. Taste Buds: Radiotherapy can sometimes directly damage your taste buds. Nerves: The tiny nerves that send taste signals to your brain can also be affected. These changes can make food taste bland or even unpleasant, which is a real challenge for many survivors. But there's hope! Simple tips like adding lemon juice, herbs, and spices can help bring back the joy of eating. Let's raise awareness for the everyday challenges faced by those with salivary gland cancer. Share this post to help us spread the word! 👇 #SalivaryGlandCancerAwareness #OneCommunityOneCause #CancerSurvivor #TasteChanges #sgcawareness @SGCancerUK
about a month ago September is Childhood Cancer Awareness Month. It's a time to remember the young people and their families who are facing a diagnosis. We support all efforts to improve care and research for children with cancer. While salivary gland cancer is more commonly diagnosed in adults, it can also occur in children. This is why it's so important for parents to trust their instincts and contact their GP if they have any concerns about their child's health. By raising awareness, we can help ensure that potential symptoms are not overlooked and that young patients receive the care they need as early as possible. #ChildhoodCancerAwareness #SGCUK #CancerResearch #KidsWithCancer #Support #ACC #AdenoidCysticCarcinoma #Protons #PBT @SGCancerUK
about a month ago What is carcinosarcoma? It's a very rare and aggressive type of salivary gland cancer that can be tricky to diagnose because it's made up of two different kinds of cancer cells. Here's what you need to know: It's extremely rare, affecting less than 1% of people with salivary gland tumors. It often grows and spreads quickly. It typically appears as a rapidly growing lump in the jaw, cheek, or mouth, and may cause pain or even facial weakness. If you notice a new or fast-growing lump, it's always best to get it checked out by a doctor. Early diagnosis is key. Raising awareness about rare cancers like carcinosarcoma is vital for better patient outcomes. Every share helps us educate more people! 💙 #SalivaryGlandCancer #RareCancers #Carcinosarcoma #CancerAwareness #HeadAndNeckCancer #OneCommunityOneCause #Sarcoma @SGCancerUK
about a month ago Salivary Gland Cancer Day is a global movement for change, and you can be part of it! There are 6 simple ways to get involved, from spreading the word on social media to exploring our educational resources. Your support creates ripples of positive change. Learn all the ways you can contribute by visiting our website: ➡️ #SGCDay #SalivaryGlandCancerDay #GetInvolved #SupportResearch #AwarenessMatters @SGCancerUK
about a month ago "Hope is being able to see that there is light despite all of the darkness." - Desmond Tutu. Hold on to hope this month. Whether it’s a moment of peace, a kind word from a friend, or a step forward in your journey, every bit of light matters. #InspirationalQuote #Hope #DesmondTutu #SGCUK #CancerSupport @SGCancerUK
about a month ago Let's talk about the symptoms. Salivary gland cancer can be difficult to diagnose. We have a wealth of information on our website about different types, their symptoms, and what to look out for. Share this post to help someone else understand the signs. You can also find shareable resources here #SGCUK #SalivaryGlandCancerAwareness #SymptomChecker #RareCancer #KnowTheSigns @SGCancerUK
about a month ago A massive thank you to our amazing fundraisers who ran The Big Half for us. Particular thanks to Martyn for sending us this brilliant photos. YOU ARE AMAZING. If you would like to support him, his page is still open here #TheBigHalf2025 #Fundraising #Community #LondonRunning #SalivaryGlandCancer @SGCancerUK
about a month ago September is Gynaecological Cancer Awareness Month in the UK, a time to raise awareness for all five gynaecological cancers: womb, ovarian, cervical, vulval, and vaginal. We at Salivary Gland Cancer UK stand in solidarity with all those affected by these cancers. Our work is particularly connected to this cause through Bartholin gland adenoid cystic carcinoma, a rare vulvar cancer that originates in the Bartholin gland, which is a type of salivary gland. This unique link highlights the importance of our collective efforts in raising awareness for all rare cancers. Early diagnosis is crucial for better outcomes in all cancers, and this is especially true for Bartholin gland carcinoma, which can often be mistaken for benign conditions. By raising awareness together, we can empower both patients and medical professionals to be vigilant about symptoms and work towards earlier diagnosis and improved outcomes. We are committed to fostering collaboration and sharing knowledge across different cancer communities. Together, we can make a greater impact and shine a light on these often-overlooked diseases. #ACC #AdenoidCysticCarcinoma #GCAwarenessMonth #SalivaryGlandCancer #EarlyDiagnosis #OneCommunityOneCause @SGCancerUK
about a month ago As we look ahead to a new month, take a moment to reflect on your own strength. The small steps you take each day, the conversations you have, and the kindness you show yourself all make a difference. What's one thing you're proud of from this past month? Share in the comments to inspire others. #MentalHealthMatters #SelfCare #SGCUK #Strength #Mindfulness @SGCancerUK
about a month ago September is here! It’s a great time to reconnect with our community. The journey with salivary gland cancer can be challenging, but you don't have to walk it alone. Email [email protected] if you would like to do more in our community, from peer support to fundraising, the more we do together the better we all are. #SalivaryGlandCancer #SGCUK #PatientSupport #CancerCommunity #September @SGCancerUK

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