Podcasts and Videos

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Podcasts and Videos

Our podcasts and videos are created from recordings made at our events which allows us to capture all the points and questions raised by patients and carers at the meeting.


Dr Metcalf talks about treatment options for metastatic disease (or 'mets')

Medical Oncologist Dr Robert Metcalf talks about treatment options for metastatic disease and when they might, or might not be used. 

The podcast of the discussion is here and available to listen to and download.


Dr Laura Feeney talks about her research into outcomes with Lenvatinib in Adenoid Cystic Carcinoma patients

Clinical Research Fellow, Dr Laura Feeney, talks about her Review of Real World Outcomes with Lenvatinib in Recurrent/Metastatic Adenoid Cystic Carcinoma ('ACC').

You can see her video here. 


ACC research update and what to look out for 

Jeff Kaufman, founder and Director of the ACCRF, who regularly joins our gatherings gives an update on ACC research worldwide and what we can expect to see from ACC research in 2021.

You can view his video update here.


Dr Metcalf talks about scans, follow-ups and nomograms in our first podcast

Medical oncologist Dr Robert Metcalf talks about scans, in particular MRI and CT scans, and their role in discovering and monitoring disease in ACC.

How often should you have scans? Does an MRI scan show ACC growing on your nerves? What is a nomogram and how can it help in discussions with your clinicians?

A podcast of this scan discussion can be found here and is now available to listen to and download.


Molecular Profiling in Salivary Gland Cancer, Dr Sam Rack speaking at the SGC UK hybrid gathering  

At our October 2021 gathering Dr Sam Rack talked to us about the work he is doing at The Christie in Manchester.  Watch a video of his presentation here.


Understanding Adenoid Cystic Carcinoma: the role of MYB

What is Adenoid Cystic Carcinoma? What are the different types?  What is MYB?  Why is MYB important in ACC?

Professor Arturo Sala's presentation at our October 2021 gathering is available to watch here

In it he updates us on his research to understand what drives ACC and how it might be stopped.