Salivary Gland Cancer UK
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  • Home
  • About Us
    • Our Mission
    • The Story so Far - Our 5 year impact Report (2024)
    • Our 8 Aims
    • SGC Research
    • SGC Research Grants
    • UK Salivary Gland Cancer Research Working Group (UKSGCWG)
    • SGC Travel Grants
    • Board of Directors
    • Our Partners
    • Salivary Gland Cancer UK Mascots
    • PPIE (Patient and Public Involvement and Engagement) Work
  • Treatment Options
    • Diagnosis
    • Surgery
    • Radiotherapy
    • Drug Therapies
      • Drug Therapies - Immunotherapy
    • Clinical Trials
    • Radiofrequency ablation (RFA)
    • Gene profiling or tumour profiling or genomic testing
    • Patient follow up after treatment for SGC
  • Our Stories
    • Alex's story
    • Alison's story
    • Alison C's story
    • Allison D's story
    • Barry's story
    • Christine's story
    • Dawn's story
    • Heather's story
    • Ian's story
    • Jade's story
    • Jamie's story
    • Jev's story
    • Jim's story
    • Kamla's story
    • Karen's story
    • Matilda's story
    • Ruth's story
    • Sarah's story
    • Shane's story
    • Susan's story
    • Wendy's story
  • Patient and Carer Support
    • Anxiety Management Techniques
    • Exercise for the head, neck and shoulder area
    • Returning to Work
    • Tips on communicating with an electrolarynx
    • How can I best support my mother?
    • Kemi shares her advice for supporting a loved one with cancer
    • Radiotherapy Treatment and Late Effects
      • The Late Effects of Radiotherapy Treatment with Emma Hallam, Consultant Therapeutic Radiographer
      • What is Radiation Induced Fibrosis? And How To Reduce Its Effects
      • Tips for Salivary Gland Cancer Patients Living with Radiotherapy Late Effects
      • Top tips for radiotherapy treatment from our network member Dawn
    • Dawn's tips for someone close to someone with Salivary Gland Cancer
    • Pain
    • Quality of Life (QoL) in Adenoid Cystic Carcinoma (ACC) Patients with Dr Joe Haigh
    • Mindfulness Practice with Emma Hallam, Consultant Therapeutic Radiographer
    • Psychological Support for those affected by Salivary Gland Cancers
  • Support SGC UK (and get involved)
    • Join Our Network (and get our newsletter)
    • Donate tissue to the Biobank
    • Our 2025 Events (gatherings and webinars)
    • Donate and help our work
    • Patient – Researcher Trial Discussions
    • Podcasts and Videos
    • Volunteering with SGC UK at a conference or event
    • Salivary Gland Cancer Day - 4th October
    • SGC UK Shareable Resources
    • Leaflets and Flyers
    • Ribbons, t shirts, baseball caps and much more....
  • Salivary Gland Cancers
    • A guide to different types of Salivary Gland Cancers
    • Acinic Cell Carcinoma (AcCC)
    • Adenocarcinoma
    • Adenocarcinoma, NOS
    • Adenoid Cystic Carcinoma (ACC)
    • Basal Cell Adenocarcinoma (BCAC)
    • Clear Cell Carcinoma (CCC)
    • Mucoepidermoid Carcinoma (MEC) & Warthin-like MEC
    • Salivary Duct Carcinoma (SDC)
    • Secretory Carcinoma (SC)
    • Polymorphus adenocarcinoma (PAC)
    • Carcinosarcoma
    • Myoepithelial carcinoma (MC)
  • Body sites affected by SGC
    • Major Salivary Glands - Parotid, Sublingual and Submandibular
    • Secretory Glands - The Lacrimal Gland
    • Secretory Glands - Bartholin's Gland
    • Secretory Glands - The Lining of the Trachea
    • Skin
    • Nerves in the Head and Neck - Trigeminal Nerve
    • Nerves in the Head and Neck - Optic Nerve
    • Bone Structures in the Face
    • The Spine
    • The Ears
    • The Eye
    • How we taste
    • How we swallow
  • Fundraising for SGC UK
    • Run
    • Walk
    • Swim
    • Some fundraising ideas
    • Paying in the funds you've raised
    • Fundraising at work
    • Leaving a gift in your will
  • Salivary Gland Cancer Science - Research Updates
    • Salivary gland cancer: new classifications and diagnostic challenges
    • Association of quality of life with mortality in patients with adenoid cystic carcinoma using an internationally-validated QoL questionnaire (EQ-5D-5L)
    • Tracheal Adenoid Cystic Carcinoma: why studying it matters - and how biobanks help
    • New study examining disruption of oncogenic pathways in mucoepidermoid carcinoma (MEC)
    • New study reveals late recurrence and low survival rate of adenoid cystic carcinoma of the breast
    • New study using real-world UK data supports the use of HER2-directed therapies for HER2-positive salivary gland cancers
  • UK Salivary Gland Cancer Research Working Group (UKSGCRWG)
    • Research Working Group Members
    • RQ 1. Address the utility of Guidelines for Salivary Gland Cancers (SGC)
    • RQ 2. Assess the variation in histopathology reporting for Salivary Gland Cancers (SGC)
    • RQ 3. Standardise the decision-making processes for patients who have technically operable, Salivary Gland Cancer (SGC), where the surgery carries high morbidity
    • RQ 4. Improve the diagnostic pathway for Salivary Gland Cancer (SGC) patients
Join Our Network Add to Biobank Our Events Donate Shop

Working for those with rare salivary gland cancers.

Acinic Cell Carcinoma (AcCC)
Adenocarcinoma
Adenocarcinoma, NOS
Adenoid Cystic Carcinoma (ACC)
Basal Cell Adenocarcinoma (BCAC)
Clear Cell Carcinoma (CCC)
Salivary Duct Carcinoma (SDC)
Secretory Carcinoma (SC)
Mucoepidermoid Carcinoma (MEC)
Myoepithelial Carcinoma (MC)
Carcinosarcoma
Polymorphous Adenocarcinoma

Patient follow up after treatment for SGC

How often should I have a scan and a follow up consultation? Listen to our podcasts and access International Guidelines and relevant papers.

Jev's story

Jev writes about why he's running the Brighton Marathon in 2025, his story of being diagnosed and treated for Salivary Gland Cancer

Shane's story

After losing his right eye due to Adenoid Cystic Carcinoma, Shane talks about he has adjusted to the loss.

Heather's story

13 Nov 2024

Heather talks about how she was diagnosed with acinic cell carcinoma

Jamie's story

13 Nov 2024

Jamie talks about his diagnosis of ACC with a NOTCH mutation after developing a twinge in his mouth area

Jade's story

Jade, diagnosed at 27 with Acinic Cell Carcinoma when she was pregnant, shares her story.

Dawn's story

Dawn shares her story of being diagnosed with unknown carcinoma in her left sublingual gland

Secretory Glands - Bartholin's Gland

Here you will find some diagrams and details around the different secretory glands in our bodies.

Bone Structures in the Face

Here you will find some diagrams and details around the different bones in our face.

Fundraising at work

There are lots of ways to raise money for SGC UK at work.

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Salivary Gland Cancers
Our Stories
Patient and Carer Support
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Contact Us

hello@salivaryglandcancer.uk

Salivary Gland Cancer UK, International House, 36-38 Cornhill, London EC3V 3NG

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Salivary Gland Cancer UK is a registered charity number 1182762.