Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2020 networking events will be held in virtually in May, then in person in Bristol and Belfast later in the year.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

RT @London_Em1: Thanks to @NCRI_partners for embedding the patient voice at all levels of cancer research, from strategy to delivery. By f… about 13 days ago

The 1st presentation of our 1st poster tomorrow at #ECRD2020 'Meeting unmet needs for Adenoid Cystic Carcinoma ('ACC') Research in the UK and Beyond'. This is extremely exciting. Please come take a look. #adenoidcystic #salivaryglandcancer twitter.com/eurordis/statu… about 20 days ago

To all patients! Please take 10 mins to complete the survey, it's a chance to have the rare cancer patient voice heard and it's open globally in over 23 languages. Please re-tweet @bobpersio twitter.com/eurordis/statu… about 21 days ago

Our first virtual meeting on Saturday. Great to have acinic cell patients with us, in addition to our ACC members. The network is growing fast. Thanks to @accrf_org for the international ACC research update. Support given, received, and knowledge exchanged. Just fantastic! about 29 days ago

We held our first virtual meeting on Saturday and it was brilliant. Fantastic exercise session from Emily and as always, great worldwide ACC research update from Jeff Kaufman. Was lovely to meet new friends and catch up with 'old' ones. Website will be updated this week with more details. about 29 days ago

Thanks for joining us Sarah. You’re support is hugely appreciated. twitter.com/SarahBrigham/s… about a month ago

RT @PWMJohnson: If you're a cancer patient or worried you might have something that might be cancer, please watch this message from us all… about a month ago

RT @PWMJohnson: If you think you have any of the signs of cancer, please go and contact your GP #helpushelpyou #cancer #canceralliances #NH… about a month ago

Free cookery classes for cancer patients during lock-down. What a great initiative about a month ago

RT @HeadNeckMD: Our updated @DanaFarber experience with adjuvant #HER2 therapy in high-risk #salivary cancers showing benefit among tumors… about a month ago

Hello everyone! Our friends at EURORDIS have put together a survey to find out how Covid-19 is affecting our rare disease community - it's really important work - please do fill it in if you have time - it doesn't take long. Hopefully see you on May 2nd. Stay safe all x about a month ago

This week SGC UK is a year old! It's flown by and been fantastic! We've been overwhelmed by the support that we have received from all of you in our network. We are extremely grateful - Thank you all. Through our in person meetings we've met more patients and their supporters, and grown our clinician network. The research and dedicated group at the Christie hospital has grown too. We've expanded our activities in the UK and also in Europe, building on existing relationships. Sign up to our network to make sure you get our newsletter Take care, SGC UK x about a month ago

This week we are a year old! It's flown by and been fantastic! We've been overwhelmed by the support that we have received from our network. We are extremely grateful - Thank you all. You can join us here: salivaryglandcancer.uk/get-involved/j… about a month ago

ACC research news from our friends at ACCRF. Looking forward to hearing from Jeff Kaufman (co-founder and ED) at our virtual gathering on May 2nd #salivarygland #adenoidcystic twitter.com/accrf_org/stat… about 2 months ago

Update on worldwide ACC research from our friends at ACCRF. Looking forward to talking with Jeff at our May 2nd virtual meeting. about 2 months ago

Our next gathering on Sat May 2nd will now be virtual! Want to catch up with fellow patients & supporters, hear about ACC research, or get some specialist exercise advise? Email [email protected] for joining details. Stay safe all. #adenoidcystic #salivarygland about 2 months ago

Hello everyone! As you may have guessed we won't be meeting in person on Saturday May 2nd, but the meeting is going ahead and will now be virtual! Please let us know if you would like to come along - just email [email protected] for details. Take care and stay safe. about 2 months ago

RT @sally_crowe: Fantastic progress in uptake of core outcomes survey from different stakeholder groups - please RT and share so we can get… about 2 months ago

RT @UKCORONACANCER: Would you care to RT and let the Twitter sphere know of what we are doing in the UK CORONAVIRUS CANCER MONITORING PROJE… about 2 months ago

Website updated with the latest guidance and information for people with cancer around Coronavirus salivaryglandcancer.uk/treatment-opti… about 2 months ago

We've updated the website today with the latest guidance from Cancer Charities, signed off by the NHS Would also like to share two key messages from NHS England below. Vulnerable groups will be written to directly in the next week (hopefully) from local centres. Stay safe everyone xxx 1. If people are in treatment or about to start it is really important to communicate with their clinicians and discuss what best to do for them considering their individual circumstances. They wish to ensure they are optimising the treatment people are getting. 2. If people are at home worried about a symptom of cancer, they must get in touch with GP by phone & colleagues they seek to prioritise those who are most in need. Do not ignore symptoms. about 2 months ago

Hello! There have been a lot of questions around the implications of coronavirus for those living with cancer. A group of cancer charities has created a document giving advice on Covid-19 for people with cancer, and you can find it on our website. about 3 months ago

Hello Everyone, Just to let you know that we've changed the date of the May meeting - it is now Saturday May 2nd in Oxford (to avoid the bank holiday) - please email [email protected] to let us know you're coming along and for further details. We have a limited number of bursaries available for travel/accommodation if needed. Very much hope to see you there. about 3 months ago

RT @shortielady7: Today is #RareDiseaseDay I've been lucky enough to work for a doctor who is researching ACC Salivary gland cancer at the… about 3 months ago

Our next gathering is Saturday May 2nd in Oxford. We share patient and carer stories, and provide updates and a chance to discuss, the latest research. It's all free and limited bursaries available to help with attendance. Want to come along? Email [email protected] about 3 months ago

Thinking of all of us today on Rare Disease Day 2020. We remember those we have lost, those who live with these diseases and their after effects, our supporters, and those that will join us in the future. Today we are part of a larger group of people affected by rare diseases and we raise a glass and salute each and every one of us. Thank you to those working hard to support us, treat us and provide us with better treatment options and outcomes. about 3 months ago

Today we think of all those affected by Salivary Gland Cancers. To the patients, their supporters and all those working hard to find better treatments and improve outcomes, we salute you #rarediseaseday2020 #adenoidcystic #salivaryglandcancer #ShowYourStripes about 3 months ago

Fantastic day today @findacure_fdn at the Drug Repurposing conference. Always energising to meet like-minded folks focussed on moving forward research into our rare diseases. We will keep smiling, working hard and pushing forward. Thank you #adenoidcystic #rarecancer about 3 months ago

RT @PoorFrankRaw: I have #adenoidcysticcarcinoma (6y and counting), a very rare cancer. There are 7,000+ identified rare diseases. Each dis… about 3 months ago