Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2020 networking events or 'gatherings' will be held in virtually in May, August and October. We also have a series smaller events throughout the year.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

Very excited our next gathering is only a week away. We will be on zoom & discussing the psychological effects of SGC's, anxiety & some coping mechanisms. Research update & time to get to know each other too. DM or email to join us salivaryglandcancer.uk/get-involved/o… twitter.com/SGCancerUK/sta… about 4 days ago

Hello Everyone! Just a week until our next meeting. Exciting 🙂 Don't forget to get in touch if you'd like to come to join us. We'll be on zoom & the details are below. Saturday, 31 October 2020 from 15:00 UTC-17:30 UTC In addition to our usual research update and chance to catch up with others, we have Dr Elaine Mayon-White, a counselling psychologist, to chat with us about the psychological challenges we all face. Elaine will answer our q's & help us with some coping mechanisms. 15.00-15.30 Welcome & Introductions 15.30-17.00 Discussion with Elaine Mayon-White. If you have any questions in advance for me to share with her before the meeting, please send them through. 17.00-17.30 Research update from Dr Robert Metcalf Please DM or email [email protected] to be added to the list. See less about 4 days ago

Some good news for Scott on a trial at the new Dana-Farber centre for Salivary & Rare Head and Neck tumours. The trial is run by Glenn J. Hanna MD, and we're looking forward to seeing the full results as and when...... about 5 days ago

Fantastic to read Scott is seeing some tumour shrinkage after going on a trial at the new Dana-Farber Center. Look forward to hearing the full trial results @HeadNeckMD. Thanks, as always, for all the hard work. @DanaFarberNews @DanaFarber @accrf_org @SGCancerUK @headandneckcan twitter.com/HeadNeckMD/sta… about 5 days ago

I'm sure you'll all have seen this news....Possible new salivary glands where the nasal cavity meets the throat. Brings up two questions in my mind to be answered: 1. Are there any links to inoperable skull base Salivary Gland tumours? 2. Can we limit damage during radiotherapy to these 'new' glands and so prevent some long-term side effects such as dry mouth? about 6 days ago

Really looking forward to speaking on Nov 3rd at @swallowsgroup #HNCONF2020 on the importance of COLLABORATION between patients, caregivers & health professionals. Using the story of launching @SGCancerUK to demonstrate how powerful these collaborations are & what can be achieved twitter.com/swallowsgroup/… about 6 days ago

New salivary glands where the nasal cavity meets the throat? Links to inoperable skull base Salivary Gland tumours? Damage during radiotherapy contributing to chronic dry mouth? Interesting questions to be answered @Stuart_C_Winter @DrChrisNutting @Oracle_Cancer @swallowsgroup twitter.com/Oracle_Cancer/… about 6 days ago

RT @London_Em1: To all those with a lived experience of cancer: cancer research needs you. Want to hear how you can get involved & make a… about 7 days ago

Interesting article about Joshua Wong, a Hong Kong film-maker who, when diagnosed with Adenoid Cystic Carcinoma, decided quite early on to spend his time focused on living, rather than just “not dying”. about 8 days ago

Agreed @thartman2u, we are looking forward to seeing this film too. Really enjoyed reading some of Joshua’s thoughts and perspectives on living with #adenoidcysticcarcinoma and the after effects of his treatments. Some wise words & food for thought here. #salivaryglandcancer twitter.com/thartman2u/sta… about 8 days ago

RT @thartman2u: Patient information at Elevar Therapeutics: elevartherapeutics.com/rivoceranib-ap… about 16 days ago

RT @thartman2u: Sharing Phase II #clinicaltrial locations in #RepublicOfKorea & #UnitedStates for #rivoceranib, addresses recurrent or met… about 16 days ago

RT @SGCancerUK: 'Understanding the immune landscape in Adenoid Cystic Carcinoma' We talked to Dave Morgan, a post-doc researcher working at… about 19 days ago

'Understanding the immune landscape in Adenoid Cystic Carcinoma' We talked to Dave Morgan, a post-doc researcher working at the Lydia Becker Institute at The University of Manchester Faculty of Biology, Medicine and Health. Read all about his fantastic research into ACC here: about 20 days ago

'Understanding the immune landscape in Adenoid Cystic Carcinoma' We talked to Dave Morgan, a post-doc researcher working at @LydiaBeckerIII @FBMH_UoM. Read all about his fantastic research into ACC here: salivaryglandcancer.uk/treatment-opti… #adenoidcysticcarcinoma #salivaryglandcancer about 20 days ago

Always our aim to develop our network to represent as many of the salivary gland cancer types as possible, as you know, & we took our first step towards that aim in July, with our first Acinic Cell Carcinoma meeting. You can read all about it here about 21 days ago

Always our aim to develop our network to represent as many of the salivary gland cancer types as possible, & we took our first step towards that aim in July, with our first Acinic Cell Carcinoma meeting. You can read all about it here salivaryglandcancer.uk/get-involved/o… #salivaryglandcancer about 21 days ago

Most excellent news from our friends in the US 🙂 about 22 days ago

Hello Everyone! October is here. This means there are two exciting events are happening this month: -Thurs Oct 8th we are discussing drug development in SGC's using Ductal & Secretory Carcinoma's as working examples. We'll also share our new patient friendly pathway docs. -Sat Oct 31st is the latest in our 'usual' gatherings - open to everyone, but with an ACC slant. We're going to be joined by a counselling psychologist to answer questions & help us with some coping mechanisms around PTS & the negative psychological effects of a SGC diagnosis. All our welcome. Email us at [email protected] to come along or DM. Take care x about 25 days ago

The negative psychological effects of a SGC diagnosis are being addressed at our Oct 31st gathering. Together with research updates & catch ups, we will be joined by a counselling psychologist to answer q's & help patients/supporters with coping mechanisms. DM or email to join us about 25 days ago

Looking forward to talking through drug development in SGC's using Ductal & Secretory Carcinomas as working examples, next week. Will be sharing new patient friendly pathway docs too. Email [email protected] or DM to join us #salivaryglandcancer twitter.com/SGCancerUK/sta… about 25 days ago

This is fantastic news! @HeadNeckMD @DanaFarber we stand ready to collaborate in any way possible, to drive forward research and improve outcomes for #salivaryglandcancer patients. twitter.com/HeadNeckMD/sta… about 26 days ago

Couldn't agree more @sevcancamirci. It is such a privilege to work with the amazing teams focused on oncology research, and inspirational patients & their carers. Thank you all. Using these collaborations to drive it all forward, discover new therapies & improve outcomes, is key. twitter.com/sevcancamirci/… about a month ago

Promising results for ACC patients with NOTCH-activating mutations. Interim data from the phase 2 trial of AL101 shows 'significant disease control rate in the 4mg arm of 68%' #salivaryglandcancer #adenoidcysticcarcinoma globenewswire.com/news-release/2… about a month ago

Promising results for ACC patients with NOTCH-activating mutations. Interim data from the phase 2 trial of AL101 shows 'significant disease control rate in the 4mg arm of 68%' Some good news🙂 about a month ago

RT @ACCResearch1: Pediatric #AdenoidCysticCarcinoma: The Memorial Sloan Kettering Make-an-IMPACT initiative provides individuals with rare… about a month ago

Fantastic meeting of the International Rare Cancers Initiative SGC working group yesterday. THANK YOU all for the amazing work you do & the progress being made. It is appreciated @AlanHoMDPhD @RobertLMetcalf @HeadNeckMD @accrf_org @Carlavanherpen @Jimmccaul #salivaryglandcancer about a month ago

Next gathering is Thurs 8th October 4-5.30pm Uk time. Focus is Ductal Carcinoma & Secretory Carcinoma (early access to new treatments not yet routinely funded via the NHS & those targeting NTRK that are). Email [email protected] or DM to join us #salivaryglandcancer about a month ago

RT @London_Em1: To all you Head & Neck cancer early career researchers, reach out to [email protected] to enter your work into the… about a month ago

RT @HeadNeckMD: 3/15 (20%) patients with #ACC responded to lenalidomide + everolimus with a median TTF of 5.5 months in a phase I study...🤔… about 2 months ago