Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2020 networking events or 'gatherings' will be held in virtually in May, August and November. We also have a series smaller events throughout the year.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

RT @London_Em1: To all cancer patients & their carers: Important survey to ask what YOU want from Cancer & Covid-19 research - closing on… about a day ago

RT @London_Em1: A resource to support children & young adults who have family diagnosed with #headandneckcancer is in development. Qaires b… about a day ago

We're just over 2 weeks away from our next virtual gathering - exciting. Meetings are friendly and informal, a chance to meet other patients/carers and get updates on research. Q&A on scans this time too. DM/email [email protected] to join us #salivaryglandcancer twitter.com/SGCancerUK/sta… about 8 days ago

Always great to collaborate with Rare Revolution Magazine. Thanks so much for your support😊😊 about 8 days ago

Thanks for the spotlight @RareRevolutionM always so great to collaborate with you twitter.com/RareRevolution… about 9 days ago

RT @ACCResearch1: "Ayala Pharmaceuticals to Present Updated Data from Ongoing Phase 2 ACCURACY Trial of AL101 for the Treatment of R/M #Ade… about 9 days ago

Fantastic first international acinic cell carcinoma meeting last week. So rewarding to bring people together and provide specific support where there hasn't been any before. Really looking forward to working with new friends to provide reliable information, reach other patients and their supporters, and work to move things forward. Thank you to everyone involved in making these incredibly difficult and lonely situations just a tiny bit easier. about 18 days ago

Fantastic first international acinic cell carcinoma network meeting last week. It's so rewarding to bring people together and provide specific support where there hasn't been any before. Looking forward to working with new friends to provide reliable information, somewhere to go and research updates. Thank you to everyone involved in making these incredibly difficult and lonely situations just a tiny bit easier. about 18 days ago

Amazing to have started the first international #aciniccellcarcinoma network, providing support, sharing knowledge & using patient-clinician collaboration to move forward. Looking forward to #ductalcarcinoma (Sept) & #secretorycarcinoma (Oct) #salivaryglandcancer #rarecancer twitter.com/SGCancerUK/sta… about 18 days ago

Really excited to host our first acinic cell carcinoma focused zoom meeting next Wed 15th July 4-5.30pm. Email [email protected] or DM to come along. about a month ago

Please take 5 mins to complete this brilliant survey. It’s asking what cancer patients and their carers want to know about cancer and COVID-19. It’s been a worrying and confusing for many of us. This survey could help to change that by identifying OUR priorities for the cancer research community. Please share widely about a month ago

Please take 5 mins to complete this brilliant survey. It’s asking what cancer patients and carers want to know about cancer and COVID-19. It’s been worrying and confusing for many of us. This survey could help to change that. twitter.com/London_Em1/sta… about a month ago

Our Aug 15 gathering is now virtual with a research/trials update from @RobertLMetcalf & scan/radiotherapy Q&A. As always, you will meet fellow patients & carers, sharing information & support. DM or email [email protected] to come along. #adenoidcystic carcinoma about a month ago

Hello Everyone! We're going to be meeting virtually on August 15th (sadly, Bristol will have to be next year). We will have Dr Metcalf coming along to update us on UK research and also a clinical oncologist taking Q&A about scans and radiotherapy. Of course there will be a chance to catch up with each other, share stories, help and advice too. Please email [email protected] if you would like to come along. about a month ago

RT @London_Em1: Thanks to @NCRI_partners for embedding the patient voice at all levels of cancer research, from strategy to delivery. By f… about 3 months ago

The 1st presentation of our 1st poster tomorrow at #ECRD2020 'Meeting unmet needs for Adenoid Cystic Carcinoma ('ACC') Research in the UK and Beyond'. This is extremely exciting. Please come take a look. #adenoidcystic #salivaryglandcancer twitter.com/eurordis/statu… about 3 months ago

To all patients! Please take 10 mins to complete the survey, it's a chance to have the rare cancer patient voice heard and it's open globally in over 23 languages. Please re-tweet @bobpersio twitter.com/eurordis/statu… about 3 months ago

Our first virtual meeting on Saturday. Great to have acinic cell patients with us, in addition to our ACC members. The network is growing fast. Thanks to @accrf_org for the international ACC research update. Support given, received, and knowledge exchanged. Just fantastic! about 3 months ago

We held our first virtual meeting on Saturday and it was brilliant. Fantastic exercise session from Emily and as always, great worldwide ACC research update from Jeff Kaufman. Was lovely to meet new friends and catch up with 'old' ones. Website will be updated this week with more details. about 3 months ago

Thanks for joining us Sarah. You’re support is hugely appreciated. twitter.com/SarahBrigham/s… about 3 months ago

RT @PWMJohnson: If you're a cancer patient or worried you might have something that might be cancer, please watch this message from us all… about 3 months ago

RT @PWMJohnson: If you think you have any of the signs of cancer, please go and contact your GP #helpushelpyou #cancer #canceralliances #NH… about 3 months ago

Free cookery classes for cancer patients during lock-down. What a great initiative about 3 months ago

RT @HeadNeckMD: Our updated @DanaFarber experience with adjuvant #HER2 therapy in high-risk #salivary cancers showing benefit among tumors… about 4 months ago

Hello everyone! Our friends at EURORDIS have put together a survey to find out how Covid-19 is affecting our rare disease community - it's really important work - please do fill it in if you have time - it doesn't take long. Hopefully see you on May 2nd. Stay safe all x about 4 months ago

This week SGC UK is a year old! It's flown by and been fantastic! We've been overwhelmed by the support that we have received from all of you in our network. We are extremely grateful - Thank you all. Through our in person meetings we've met more patients and their supporters, and grown our clinician network. The research and dedicated group at the Christie hospital has grown too. We've expanded our activities in the UK and also in Europe, building on existing relationships. Sign up to our network to make sure you get our newsletter Take care, SGC UK x about 4 months ago

This week we are a year old! It's flown by and been fantastic! We've been overwhelmed by the support that we have received from our network. We are extremely grateful - Thank you all. You can join us here: salivaryglandcancer.uk/get-involved/j… about 4 months ago

ACC research news from our friends at ACCRF. Looking forward to hearing from Jeff Kaufman (co-founder and ED) at our virtual gathering on May 2nd #salivarygland #adenoidcystic twitter.com/accrf_org/stat… about 4 months ago

Update on worldwide ACC research from our friends at ACCRF. Looking forward to talking with Jeff at our May 2nd virtual meeting. about 4 months ago

Our next gathering on Sat May 2nd will now be virtual! Want to catch up with fellow patients & supporters, hear about ACC research, or get some specialist exercise advise? Email [email protected] for joining details. Stay safe all. #adenoidcystic #salivarygland about 4 months ago