Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2020 networking events will be held in Oxford, Bristol and Belfast.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

We will be there! It’s going to be a great event. Looking forward to seeing many of you there. twitter.com/rarerevolution… about a day ago

RT @CancerOnBoard: If you see someone wearing one of these, it means they have #cancer. They might be travelling to/from treatment, dealing… about 2 days ago

Thank you @ERN_EURACAN @eurordis for a great day of collaboration between countries, clinicians and patient advocates. Moving forward #rarecancer networks, to give better outcomes for patients #salivarygland cancer #adenoidcystic carcinoma about 13 days ago

#adenoidcystic carcinoma patients! The AL101 trial is still open. If you have mets that have recently grown, you may be eligible. Foundation One profile tumours as a pre-screen (at no cost to you) and some travel expenses can be reimbursed Contact is [email protected] about 14 days ago

Hello Everyone, Just to let you know the AL101 trial is still open at the Christie. If you have mets that have recently grown then you may be eligible for the trial. It targets NOTCH mutations, so Foundation One profile your tumour as a pre-screen (at no cost to you...) to see if you are eligible. Some travel expenses can also be reimbursed…. Get in touch with [email protected] if you think this could be for you. about 14 days ago

Saw this and thought of us...... about 17 days ago

Fantastic long weekend in Brussels last week at the WeCan Science academy for European patient advocates. So great to catch up with fellow advocates, share experiences and learn from each other. Amazing line up of researchers and clinicians as speakers. Really looking forward to sharing the knowledge in our network and using it to inform our project and research priorities for SGC UK. about 18 days ago

A great little book '100 stories of cancer' has a story from one of the members of our network. Great work @AlisonCoombes and thank you for sharing. twitter.com/100storiesbook… about a month ago

Have some of these great badges so just let us know if you need one.. twitter.com/CancerOnBoard/… about a month ago

RT @ECMC_UK: Coordinated by ECMC, a new report outlining recommendations for the effective delivery of Complex Innovative Design (CID) canc… about a month ago

A great update from our friends at the ACCRF about the research they are funding worldwide about a month ago

Happy Happy New Year to you all from SGC UK! It's not only a new year, but it's also a new decade and we are very excited to get started with 2020 and all the great events and projects we have to work on. We have our first gathering on 9th May and this time we are in Oxford ( Before that, though, we host a patient-researcher focus day in Manchester, take part in the London marathon (a network member is running to fundraise for us) and of course, on a daily basis, we continue with the research, awareness raising, support and networking, that we are dedicated to. Very much looking forward to seeing you soon in 2020. about a month ago

RT @laryngectomy75: NALC's Youtube channel has been updated recently with additional videos aimed at both patients/carers and professionals… about 2 months ago

Worth considering. A great opportunity... twitter.com/NICEGetInvolve… about 2 months ago

Fantastic news that the AL101 trial (targeting NOTCH mutations), has opened today, for ACC patients, at the Christie hospital in Manchester. It’s going to be a busy Christmas! about 2 months ago

Hello everyone! Fantastic news that the AL101 trial (targeting NOTCH) is now open at The Christie hospital in Manchester. May this be the first of many such trials to open at The Christie and in the UK more broadly... about 2 months ago

RT @RareRevolutionM: Today is #InternationalVolunteerDay - volunteers are crucial for charities. Thank you to all the volunteers that make… about 2 months ago

RT @RareRevolutionM: Hi, welcome to our #tuesdaytakeover, @Ring20UK support families, individuals and professionals who are affected by, or… about 3 months ago

Hello everyone, update re the AL101 trial that is targeting NOTCH mutations in ACC and opening Dec/Jan at the Christie. It's on track and if you haven't been in touch and are interested then please contact [email protected] or 0161 918 7673. about 3 months ago

So exciting to have our first newsletter (of many) go out to the SGC-UK network this morning. Make sure you're signed up to get future updates on our 2020 meetings, research and trials opening in the UK and opportunities to get involved. salivaryglandcancer.uk/get-involved/j… about 3 months ago

We’re a new charity for those with rare salivary gland cancers such as Adenoid Cystic Carcinoma. Our aim? To build a UK-wide information and support network for people affected by, or treating, these conditions. Join us? salivaryglandcancer.uk/get-involved/j… about 3 months ago

If you're a committed online shopper please consider supporting Salivary Gland Cancer UK in the lead up to Christmas. There are two ways to raise FREE donations while you're shopping online with no extra cost to you 😀😀 1. Amazon Smile donate 0.5% of the net purchase price (excluding VAT, returns and shipping fees) to us. If you sign in here before buying.... 2. #easyfundraising has partnered with over 4,000 shops and sites (including eBay, Argos, John Lewis & Partners, Boots, M&S, Disney and many more) to donate a % of each purchase to us. It only takes a moment to get started. Thank you so much in advance. Every single penny goes towards support for patients and carers, and furthering research in the UK, to benefit us all. about 3 months ago

We held our final gathering of 2019 in Glasgow last weekend. It was lovely to make new friends and catch up with 'old' ones! Thank you to everyone that came for sharing, supporting and contributing to the discussions, each other, and the network. It was obvious that day, from our discussions between a surgeon, a medical oncologist and patients and supporters, that open dialogue is invaluable. The question of how a registry might go some way to addressing some of the unanswered questions and challenges we all face, is something we touched on, and we (at SGC UK) will be focused on, going forward. It's exciting to be building out our focus for 2020 and fantastic to be so supported by the network we are building. Thank you. Unfortunately, the person on photo duty wasn't paying full attention, so no new pictures this time, but we look forward to many in the following months as we hit the ground running in 2020. about 3 months ago

RT @NCRI_partners: New research from @macmillancancer shows that 136,000 people are living with 'chronic cancer'. This afternoon at #NCRI20… about 4 months ago

Looking forward to our first in person meeting in Glasgow tomorrow - seeing old friends, making new ones, hearing about the latest research in the UK and internationally, and continuing to build out our network. Lots to be getting on with... twitter.com/London_Em1/sta… about 4 months ago

ACC is in the international press this weekend 😊. The story of setting up Salivary Gland Cancer UK has been published in The BMJ. This prestigious journal champions better research (since 1840!) and clinical practice and has a broad international reach. The article focusses on raising awareness of the unmet need, the challenges us as patients face and what we are doing to address this: about 4 months ago

RT @London_Em1: You can read our story of setting up Salivary Gland Cancer UK in this latest BMJ publication. Hard work, but worth it. Lo… about 4 months ago

Thank you, thank you, thank you to the amazing MudHogs. They ran over 10 miles and 25 obstacles to raise over £1500 for us, and as if that wasn't enough, the course was a 'Tough Mudder' and yes, that means there was an awful lot of mud.... You guys are great - thank you about 4 months ago

Fantastic to see adenoid cystic carcinoma in the world press - raising awareness, pushing for funding for new research. about 5 months ago

RT @ACCResearch1: "Genetic hallmarks of recurrent/metastatic #AdenoidCysticCarcinoma" bit.ly/2kAvaCt about 5 months ago