Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2020 networking events will be held in Oxford, Bristol and Belfast.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

RT @UKCORONACANCER: Would you care to RT and let the Twitter sphere know of what we are doing in the UK CORONAVIRUS CANCER MONITORING PROJE… about a day ago

Website updated with the latest guidance and information for people with cancer around Coronavirus salivaryglandcancer.uk/treatment-opti… about 9 days ago

We've updated the website today with the latest guidance from Cancer Charities, signed off by the NHS Would also like to share two key messages from NHS England below. Vulnerable groups will be written to directly in the next week (hopefully) from local centres. Stay safe everyone xxx 1. If people are in treatment or about to start it is really important to communicate with their clinicians and discuss what best to do for them considering their individual circumstances. They wish to ensure they are optimising the treatment people are getting. 2. If people are at home worried about a symptom of cancer, they must get in touch with GP by phone & colleagues they seek to prioritise those who are most in need. Do not ignore symptoms. about 9 days ago

Hello! There have been a lot of questions around the implications of coronavirus for those living with cancer. A group of cancer charities has created a document giving advice on Covid-19 for people with cancer, and you can find it on our website. about 17 days ago

Hello Everyone, Just to let you know that we've changed the date of the May meeting - it is now Saturday May 2nd in Oxford (to avoid the bank holiday) - please email [email protected] to let us know you're coming along and for further details. We have a limited number of bursaries available for travel/accommodation if needed. Very much hope to see you there. about 29 days ago

RT @shortielady7: Today is #RareDiseaseDay I've been lucky enough to work for a doctor who is researching ACC Salivary gland cancer at the… about 29 days ago

Our next gathering is Saturday May 2nd in Oxford. We share patient and carer stories, and provide updates and a chance to discuss, the latest research. It's all free and limited bursaries available to help with attendance. Want to come along? Email [email protected] about 29 days ago

Thinking of all of us today on Rare Disease Day 2020. We remember those we have lost, those who live with these diseases and their after effects, our supporters, and those that will join us in the future. Today we are part of a larger group of people affected by rare diseases and we raise a glass and salute each and every one of us. Thank you to those working hard to support us, treat us and provide us with better treatment options and outcomes. about 29 days ago

Today we think of all those affected by Salivary Gland Cancers. To the patients, their supporters and all those working hard to find better treatments and improve outcomes, we salute you #rarediseaseday2020 #adenoidcystic #salivaryglandcancer #ShowYourStripes about 29 days ago

Fantastic day today @findacure_fdn at the Drug Repurposing conference. Always energising to meet like-minded folks focussed on moving forward research into our rare diseases. We will keep smiling, working hard and pushing forward. Thank you #adenoidcystic #rarecancer about a month ago

RT @PoorFrankRaw: I have #adenoidcysticcarcinoma (6y and counting), a very rare cancer. There are 7,000+ identified rare diseases. Each dis… about a month ago

RT @RareRevolutionM: A big week ahead in the #RareDisease community... #RareDiseaseDay2020 🦓🧬 about a month ago

We will be there! It’s going to be a great event. Looking forward to seeing many of you there. twitter.com/RareRevolution… about a month ago

RT @CancerOnBoard: If you see someone wearing one of these, it means they have #cancer. They might be travelling to/from treatment, dealing… about a month ago

Thank you @ERN_EURACAN @eurordis for a great day of collaboration between countries, clinicians and patient advocates. Moving forward #rarecancer networks, to give better outcomes for patients #salivarygland cancer #adenoidcystic carcinoma about 2 months ago

#adenoidcystic carcinoma patients! The AL101 trial is still open. If you have mets that have recently grown, you may be eligible. Foundation One profile tumours as a pre-screen (at no cost to you) and some travel expenses can be reimbursed Contact is [email protected] about 2 months ago

Hello Everyone, Just to let you know the AL101 trial is still open at the Christie. If you have mets that have recently grown then you may be eligible for the trial. It targets NOTCH mutations, so Foundation One profile your tumour as a pre-screen (at no cost to you...) to see if you are eligible. Some travel expenses can also be reimbursed…. Get in touch with [email protected] if you think this could be for you. about 2 months ago

Saw this and thought of us...... about 2 months ago

Fantastic long weekend in Brussels last week at the WeCan Science academy for European patient advocates. So great to catch up with fellow advocates, share experiences and learn from each other. Amazing line up of researchers and clinicians as speakers. Really looking forward to sharing the knowledge in our network and using it to inform our project and research priorities for SGC UK. about 2 months ago

A great little book '100 stories of cancer' has a story from one of the members of our network. Great work @AlisonCoombes and thank you for sharing. twitter.com/100storiesbook… about 2 months ago

Have some of these great badges so just let us know if you need one.. twitter.com/CancerOnBoard/… about 3 months ago

RT @ECMC_UK: Coordinated by ECMC, a new report outlining recommendations for the effective delivery of Complex Innovative Design (CID) canc… about 3 months ago

A great update from our friends at the ACCRF about the research they are funding worldwide about 3 months ago

Happy Happy New Year to you all from SGC UK! It's not only a new year, but it's also a new decade and we are very excited to get started with 2020 and all the great events and projects we have to work on. We have our first gathering on 9th May and this time we are in Oxford ( Before that, though, we host a patient-researcher focus day in Manchester, take part in the London marathon (a network member is running to fundraise for us) and of course, on a daily basis, we continue with the research, awareness raising, support and networking, that we are dedicated to. Very much looking forward to seeing you soon in 2020. about 3 months ago

RT @laryngectomy75: NALC's Youtube channel has been updated recently with additional videos aimed at both patients/carers and professionals… about 3 months ago

Worth considering. A great opportunity... twitter.com/NICEGetInvolve… about 3 months ago

Fantastic news that the AL101 trial (targeting NOTCH mutations), has opened today, for ACC patients, at the Christie hospital in Manchester. It’s going to be a busy Christmas! about 3 months ago

Hello everyone! Fantastic news that the AL101 trial (targeting NOTCH) is now open at The Christie hospital in Manchester. May this be the first of many such trials to open at The Christie and in the UK more broadly... about 3 months ago

RT @RareRevolutionM: Today is #InternationalVolunteerDay - volunteers are crucial for charities. Thank you to all the volunteers that make… about 4 months ago