Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2021 networking events or 'gatherings' will be held in virtually in January, April, July and October. We also have a series smaller events or 'mini zooms' helf throughout the year.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

Podcasts and Videos

Our podcasts and videos are created from recordings made at our events which allows us to capture all the points and questions raised by patients and carers at the meeting.

Our friends at Oracle Cancer Trust are doing a survey to inform their head and neck cancer research strategy for 2022 and beyond. As funders of salivary gland cancer research they would like to hear from us to know what’s important to salivary gland cancer patients and their carers. Please consider taking 10 mins to complete. It all helps us move forwards…. about 12 days ago

To all those who had #salivaryglandcancer in the #headandneck area, please do consider completing the survey from our friends @Oracle_Cancer Trust. It doesn't take long 😀👇 twitter.com/Oracle_Cancer/… about 17 days ago

What is molecular profiling & how can it help #salivaryglandcancer patients? Watch Dr Sam Rack, @TheChristieNHS talking about his research at our Oct 2021 hybrid gathering: salivaryglandcancer.uk/get-involved/p… #adenoidcysticcarcinoma #salivarycancer #sgcuk #rarecancers #accwarrior #profiling about 17 days ago

What is molecular profiling and how can it help us cancer patients? * What is a signal and what is a target? * How does all this translate to new drug treatments for us? * Watch Dr Sam Rack's presentation about his research at The Christie Hospital in Manchester to hear the answers. * Recorded at our hybrid gathering in October 2021. * * #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #profiling #cancerresearch about 17 days ago

RT @London_Em1: To all cancer patients 18+ diagnosed in the last year and/or undergoing cancer treatment now. Pls take part in the survey,… about a month ago

If you're in the UK and you experienced #salivaryglandcancer as a child, or are the parent of a child that was diagnosed with cancer, then there's an opportunity to get involved in research @sevcancamirci #acckt twitter.com/NCRI_partners/… about a month ago

A new US trial is opening in Dec 2021: Phase II study to evaluate Amivantamab, a bispecific EGFR and MET inhibitor, in recurrent and metastatic #AdenoidCysticCarcinoma at the University of Cincinnati @UCResearch clinicaltrials.gov/ct2/show/study… about a month ago

Jade was just 27 years old when excruciating migraines led to her being admitted into hospital when she was pregnant. * A MRI scan picked up an unrelated lump on her salivary gland. * After giving birth, she was eventually told that the lump was acinic cell carcinoma, a type of salivary gland cancer. * Jade went onto continue her university degree while looking after her son and having cancer treatment. * She wants to share her story as she is so young and it is such a rare cancer. * You can watch her interview here: * Image taken from a video - no copyright infringement is intended. #aciniccellcarcinoma #aciniccell #acinic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #cancerawareness #headandneckcancer about a month ago

RT @Oracle_Cancer: Could you spare 15mins to help shape our strategy? We've created a survey buff.ly/3AqTk33 with Heads2gether, @SG… about a month ago

RT @MandanaDonoghue: We have organized another great session this Tuesday, 12/10/ 21, at 11:00 IST,07:30 SAST, 06:30 BST, 02:30 BRT, and 01… about 2 months ago

Really looking forward to #RAREsummit2021 on Oct 7th. It's not too late to get a ticket. Great line up of speakers focussed on topics of great importance to the rare disease community - example below👇 twitter.com/camraredisease… about 2 months ago

This is some of the amazing feedback from our last in person gathering in 2019. * We're delighted our autumn gathering is next Sat Oct 9th in London (Euston) and by zoom. * Meet other patients and their supporters, hear about research updates in #adenoidcysticcarcinoma and genomic profiling for #salivaryglandcancer from lead researchers. * Email or DM to come along. Bursaries available to help with travel and all are welcome. * It's casual, friendly and a fantastic opportunity. It runs 10am to 4pm with lunch included and you can dip in and out. #adenoidcystic #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc about 2 months ago

Last call for our gathering on Sat Oct 9th. Join us in person or virtually to hear about Prof Arturo Sala's #adenoidcysticcarcinoma research, Dr Sam Rack's genomic profiling work #salivaryglandcancer & how they link to new treatments & trials. Email or DM. Free lunch too 🙂 twitter.com/SGCancerUK/sta… about 2 months ago

RT @London_Em1: Please do complete & share widely our covid, vaccine & cancer research survey part II. It could help get your questions an… about 2 months ago

Good luck to all the marathon runners. Not long now! * Keep up the good work and thank you all for working so hard to raise much needed money for charities around the country. * Run like the wind. We salute you. #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #charityfundraising #londonmarathon about 2 months ago

This is the amazing Nick who is running the London Marathon on Sunday in support of us. Thank you & good luck to him & all the others running to raise vital funds for Charities. Run like the wind. We salute you. bit.ly/3F7jBXK #salivaryglandcancer #adenoidcysticcarcinoma about 2 months ago

This is the amazing Nick who is running the London marathon on Oct 3rd for Salivary Gland Cancer UK. * Not only is he running it, he's been training for months, changed his eating and drinking habits and hopes to finish in under 4 hours. * We just want to say 'thank you Nick' - your support is appreciated so very much. * Nick's sister Emma is one of our founders and without the support of you and others like you, the journey wouldn't have been possible - from both a personal and charity perspective. * * #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivary cancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #charityfundraising about 2 months ago

Fancy meeting up? Our autumn gathering on Sat 9th October is in London, UK and also via zoom. * In the morning we catch up with old friends and new, have a short presentation/discussion about genomic profiling, and how it matches patients to trials. * Then lunch - on us! * In the afternoon we have Dr Arturo Sala from Brunel University joining us to talk about and discuss his research into MYB and its' role in ACC. * Email or DM to come along. It's going to be great! * Bursaries available to help with travel and accommodation. * #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivary cancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #charityfundraising about 2 months ago

Delighted that Prof Arturo Sala is joining our Oct 9th gathering to talk about his @Oracle_Cancer funded work 'Understanding Adenoid Cystic Carcinoma: the role of MYB-regulated kinases'. [email protected] or DM to join us in person or via zoom #adenoidcysticcarcinoma twitter.com/SGCancerUK/sta… about 2 months ago

For those living with #adenoidcysticcarcinoma, life is different. How can we deal with associated 'social anxiety' when out with friends? In our short video @sevcancamirci learns techniques that can help us all salivaryglandcancer.uk/our-stories-vi… #salivaryglandcancer #socialanxiety #acc about 2 months ago

For those of us living with #adenoidcysticcarcinoma, life is different. * Seeing people in person after being in social isolation from Covid is hard. * For some of us, these things can trigger 'social anxiety'. * In our short video Sevcan talks to Dr Elaine Mayon-White to learn the techniques that can help us manage and cope with that anxiety. * For many of us, we need to accept that there are things that make us different. We have to learn to process loss. * Watch our short video here: #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc about 2 months ago

Are you ready to kick off your #20for20 challenge tomorrow? * We are ready to cheer you on! Wonderful to see sign ups already. * Please join in. Hoping for 20 people to raise £100 each over the next 3 months in anyway you want! * * #CancerDoesntStopForCovid #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #charityfundraising about 2 months ago

Are you ready to kick off your #20for20 challenge tomorrow? We are ready to cheer you on! Wonderful to see sign ups already. Please join in. Hoping for 20 people to raise £100 each over the next 3 months in anyway you want! justgiving.com/campaign/20for… #CancerDoesntStopForCovid about 2 months ago

RT @AyalaPharma: We are excited to be sharing two posters on #adenoidcysticcarcinoma at @myESMO on September 16: one with preliminary clini… about 2 months ago

Great to see this published @RobertLMetcalf @TheChristieNHS. You can see Dr Laura Feeney talk about this research at our gathering here: salivaryglandcancer.uk/get-involved/p… #adenoidcysticcarcinoma #salivaryglandcancer #realworldresearch twitter.com/ACCResearch1/s… about 2 months ago

RT @London_Em1: 'What do cancer patients & their carers want to know about cancer, Covid-19 & vaccines?' Pls complete & share widely our ne… about 2 months ago

Join us in supporting #RAREsummit21 virtually on 7th October 2021. A highlight on the rare disease calendar. * Brought to you by the Cambridge Rare Disease Network, RAREsummit21 is a 1-day virtual summit focusing on rare disease progress and visions for the future. * #RAREsummit21 is a powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact. about 3 months ago

Not be to missed #RAREsummit21 a key virtual event on the #RareDisease calendar 7 October 2021! A great lineup of speakers. Find out more and register now. @camraredisease. camraredisease.org/raresummit21 twitter.com/camraredisease… about 3 months ago

How can carers best support patients & family members, while also looking after themselves? Carers often put their own needs to one side, but there are ways to help & involve the whole family ow.ly/KvRA50G8cDJ #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer about 3 months ago

Protecting the family, protecting the children, who’s protecting who and to what end? * Talking on behalf of her mum and about caring for her mum, Kiran’s story is about how difficult it is when everyone is hiding their feelings and essentially putting on a brave face. * She asks how carers can best support patients and family members, while also looking after themselves? * It’s a complex issue when usually carers can tend to put their own needs to one side. * Here Kiran’s story and the advice given by Dr Mayon-White #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #counsellingsupport about 3 months ago