Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2019 networking events will be held in London in May and in Glasgow in the autumn.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

We held our final gathering of 2019 in Glasgow last weekend. It was lovely to make new friends and catch up with 'old' ones! Thank you to everyone that came for sharing, supporting and contributing to the discussions, each other, and the network. It was obvious that day, from our discussions between a surgeon, a medical oncologist and patients and supporters, that open dialogue is invaluable. The question of how a registry might go some way to addressing some of the unanswered questions and challenges we all face, is something we touched on, and we (at SGC UK) will be focused on, going forward. It's exciting to be building out our focus for 2020 and fantastic to be so supported by the network we are building. Thank you. Unfortunately, the person on photo duty wasn't paying full attention, so no new pictures this time, but we look forward to many in the following months as we hit the ground running in 2020. about 5 days ago

RT @NCRI_partners: New research from @macmillancancer shows that 136,000 people are living with 'chronic cancer'. This afternoon at #NCRI20… about 11 days ago

Looking forward to our first in person meeting in Glasgow tomorrow - seeing old friends, making new ones, hearing about the latest research in the UK and internationally, and continuing to build out our network. Lots to be getting on with... twitter.com/London_Em1/sta… about 13 days ago

ACC is in the international press this weekend 😊. The story of setting up Salivary Gland Cancer UK has been published in The BMJ. This prestigious journal champions better research (since 1840!) and clinical practice and has a broad international reach. The article focusses on raising awareness of the unmet need, the challenges us as patients face and what we are doing to address this: about 26 days ago

RT @London_Em1: You can read our story of setting up Salivary Gland Cancer UK in this latest BMJ publication. Hard work, but worth it. Lo… about 26 days ago

Thank you, thank you, thank you to the amazing MudHogs. They ran over 10 miles and 25 obstacles to raise over £1500 for us, and as if that wasn't enough, the course was a 'Tough Mudder' and yes, that means there was an awful lot of mud.... You guys are great - thank you about a month ago

Fantastic to see adenoid cystic carcinoma in the world press - raising awareness, pushing for funding for new research. about 2 months ago

RT @ACCResearch1: "Genetic hallmarks of recurrent/metastatic #AdenoidCysticCarcinoma" bit.ly/2kAvaCt about 2 months ago

Delighted to announce a new collaboration today. Salivary Gland Cancer UK is now part of Rare Disease UK which is a national campaign for rare diseases and all who support them. Really looking forward to the UK European Reference Networks ('ERN's) conference on Sept 17th. Rare Disease UK is one of the national campaigns of Genetic Alliance UK (the national UK charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions) and as a member, we join an alliance of over 200 patient organisations. 😊 about 2 months ago

The next ACC gathering is in Glasgow on 2 November. Email [email protected] to let us know you are attending about 3 months ago

Ruth on life with ACC, her treatment for lung metastases and how she likes to keep up with all the latest research. about 3 months ago

Interesting article here on Carbon Ion and how Mike who had ACC decided to seek it out wired.com/story/why-a-pr… about 3 months ago

Ian on being diagnosed with ACC, how he managed work and treatment and dealing with radiotherapy. about 3 months ago

Absolutely brilliant day at Frinton-on-sea Tennis Club Charity Tournament last weekend - so much fun! THANK YOU to Bill, Gill and everyone that played, raising over £700 for us. Your support is very much appreciated and every penny goes towards supporting our members - patients and carers, clinicians and researchers. about 3 months ago

Interesting article in Wired based around the story of Mike diagnosed with ACC. Some interesting history around the use of Carbon Ion therapy in the US and discussion around proton beams and carbon ion therapies. about 3 months ago

ACC European Gathering taking place on September 14th in Brussels: Hosted by Vassiliki (who you may have met in London in May at the SGC-UK gathering), this is the 12th annual European meeting and if you would like to attend please email her at [email protected] It's a great opportunity to meet fellow patients and carers from all over Europe. The day is funded by the ACCOI and travel grants available from the generous fund of the late Marina Speck. about 3 months ago

Our first big cheque! Thanks to Kaye and all at N Brown. You too can donate through our website ! about 3 months ago

Our first 'big cheque' !!! It was a privilege to receive this yesterday in Manchester. Thank you to Kaye, all at N Brown who made this happen and to the weather for holding out and not raining on us😊 A special day about 3 months ago

RT @CRUK_Policy: “For my cancer care, from diagnosis to treatment, I have many NHS staff to thank. They are the reason I can be a mother to… about 3 months ago

Our next event for patients and their supporters will be in 2nd November in Glasgow.... hold the date, more info to follow! about 3 months ago

Check out @CancerOnBoard who aim to make every journey a little easier for cancer patients about 3 months ago

RT @NCRI_partners: We have extended the application deadline for consumers (patients/carers) to join the following Research Groups If you… about 3 months ago

Thank you James and Katie from Cancer on Board for the meet up on Saturday and for getting us all badges to make travelling on public transport just that little bit easier.... about 3 months ago

Have you checked out our website yet? Salivary Gland Cancer UK salivaryglandcancer.uk about 3 months ago

RT @MayoClinic: If you're diagnosed with #SalivaryGlandCancer, your health care provider will determine the extent, or stage, of your cance… about 3 months ago

RT @sally_crowe: I’m so excited about this...as someone with a rare Salivary Gland cancer (with limited treatment options and research) to… about 3 months ago

Liz Hawkins on taking Lenvatinib and what it is like. about 4 months ago

Amazing cake sale organised by Kaye. It raised over £700 for us! THANK YOU so much x about 4 months ago

RT @ACCResearch1: "Correlation between SOX2 and Survivin clinical features in patients with salivary #AdenoidCysticCarcinoma" https://t.co/… about 4 months ago

RT @thartman2u: @ACCResearch1 Thx to @ACCResearch1 - Here is link to PubMed entry for recent research article that includes #AdenoidCysticC… about 4 months ago