Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2021 networking events or 'gatherings' will be held in virtually in January, April, July and October. We also have a series smaller events or 'mini zooms' helf throughout the year.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

Podcasts and Videos

Our podcasts and videos are created from recordings made at our events which allows us to capture all the points and questions raised by patients and carers at the meeting.

When to return to work after #HNCancer treatment? Only a person with #HNCancer can answer that question. Download the #BackToWorkGuide to access tools to support you in making informed decisions and confident conversations, by clicking here bit.ly/3zAkVPl about 10 hours ago

Thank you to all who came to our summer gathering on Saturday 31st July. * Fantastic presentation from Dr Ali Khurram about the work that pathologists do, the challenges they face and what's new and exciting in that world. * I am delighted to say I now know about 'splitters vs lumpers', grading and more. It was great to be able to share our expertise with the pathologists too - a mutual learning experience. * Looking forward to more pathologist-salivary gland cancer patient interactions. * Video/podcast to follow for those that couldn't make it. #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #pathology #acinic @sakhurram present @SGCancerUK summer meeting, enabling #cancerpatient-#pathologist interaction & mutual learning. about a day ago

RT @London_Em1: Fantastic to have @sakhurram present @SGCancerUK summer meeting, enabling #cancerpatient-#pathologist interaction & mutual… about 2 days ago

Thank you @MxBenSpiller. We're also on Easyfundraising, where you can donate everytime you shop online without it costing you a single penny! easyfundraising.org.uk/causes/salivgl…. All money goes directly to helping further research into, and support for, those affected by #salivaryglandcancer twitter.com/MxBenSpiller/s… about 2 days ago

Couldn't have said it any better @SarahBrigham. Massive thanks to @sakhurram and to all who came to our summer gathering. Now I know about 'splitters vs lumpers', grading and more. Looking fwd to more #pathologist #salivaryglandcancer patient interactions #adenoidcysticcarcinoma. twitter.com/SarahBrigham/s… about 2 days ago

#DYK that 2 key pieces of legislation in the UK&I protect the working rights of someone diagnosed with cancer? Read more about the frameworks in the new #HNCancer #BackToWorkGuide. Click here to download the guide bit.ly/3y7NnYv about 5 days ago

#DidYouKnow that there are two key pieces of legislation in the UK&I that protect the working rights of someone diagnosed with cancer? Knowing about the legislation and how it relates to people with cancer can help them to feel more confident asking for the support or adjustments.\ Read more about the legal frameworks that have been put in place to help cancer patients get #BackToWork in the new #HNCancer #BacktoWorkGuide. To download and read the guide, click here 🖱️ about 5 days ago

On #WHNCD2021 🌍, we want to raise awareness of the challenges and share possible solutions to help #HNCancer patients feel more confident when returning to work with the #BackToWorkGuide. To download and read the guide, click here 🖱️ hbit.ly/3zAkVPl about 7 days ago

We know that getting #BackToWork after treatment is not always easy – and this is something that those living with or supporting people with Head and Neck Cancer in the UK & Ireland have known for a long time. On #WHNCD2021 🌍, we want to raise awareness of the challenges and share possible solutions to help people living with #HNCancer feel more confident when returning to work. We hope the #BackToWorkGuide will help someone looking to get back to work assess their options, have positive conversations with employers and overcome some potential barriers. Ultimately, we hope it helps them feel confident when going #BackToWork. To download and read the guide, click here 🖱️ about 7 days ago

Today we think of all those affected by #headandneckcancer. We think of the patients, the carers, the friends of patients. We thank the clinicians, allied health professionals and researchers, who are focussed on 'bettering' outcomes for patients. #salivaryglandcancer #WHNCD2021 about 7 days ago

Final call ..... email [email protected] or DM to join twitter.com/SGCancerUK/sta… about 10 days ago

Some #salivaryglandcancers such as #adenoidcysticcarcinoma like to metastasize, sometimes in our bones. What do want research to focus on for these bone mets? Early detection? Treatments? Prevention &/or treatment of complications? QoL & supportive care? Have your say here 👇 twitter.com/NCRI_partners/… about 19 days ago

Delighted we are going to have so many join us on July 31st. For anyone else that would like to join pls DM or email [email protected] twitter.com/SGCancerUK/sta… about 26 days ago

Summer gathering at 2-4.30pm. @sakhurram joins us to talk about diagnostic challenges & treatment impact. Time to catch up with others, share experiences, support & knowledge too. ALL welcome. Email or DM to join #acc #adenoidcysticcarcinoma #salivaryglandcancer #salivarycancer about 28 days ago

'The challenges of diagnosis, and what this means for treatments' is the focus of our summer 2021 gathering on Saturday July 31st 2021 at 2-4.30pm UK time. Dr Ali Khurram, a clinical academic pathologist and researcher, based in Sheffield, is joining us to talk with us and answer our questions. * As always, there will be time to catch up with old friends, make new ones and share experiences, support and knowledge, to learn something new and help others. * ALL are welcome. Please email [email protected] or DM to come along. If you've been to an event before we will automatically send you the joining details and agenda next week. #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #pathology #diagnosis about 28 days ago

Fantastic to see patient-clinician collaboration in action. Patient co-authorship of these #salivaryglandcancer guidelines. twitter.com/accrf_org/stat… about a month ago

The @ACCRF updates are always a joy to read. Thank you for all the fantastic work twitter.com/accrf_org/stat… about a month ago

It doesn't matter what type of work you choose to do, but whatever it is, cancer should not stop you from going back to it, if you want to. * Those of us who have #cancer in the #headandneck area, find it harder to get back to work, than people who have had other types of cancer. Will you help research into why it’s so hard? * Not all #salivaryglandcancers have their primary tumour in the #headandneck area, but many do. * This is the 2nd chance to participate if you missed it first time. It only takes 15 mins & could help improve outcomes for patients. * Please share &/or take part in the study. Closes Jul 31st. * It's important. Thank you. #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #charityfundraising #returntowork about a month ago

Not all #salivaryglandcancers have their primary tumour in the #headandneck area, but many do. Pls share &/or take part in this study aiming to improve #returntowork rates and outcomes for patients. It's important. Thank you. twitter.com/London_Em1/sta… about a month ago

Want to know about Lenvatinib, what it does as a 'targeted therapy' and how it might help ACC patients? * Watch Dr Laura Feeney's talk on her real world research, leveraging collaboration across clinicians, researchers and treatment centres. * Looking forward to hearing the outputs in the coming months. * * Adapted from one of our gatherings, join us for the next one on July 31st, all links in the profile. * #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivary cancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #lenvatinib #targetedtherapy #mets #metastaticdisease about a month ago

Any chance of seeing a recording of the talk….? 🤔#IAOP2021? twitter.com/ibrahimSalsani… about a month ago

What are the treatment options for metastatic disease? Our latest podcast created from questions & discussion at one of our gatherings, addressing the things patients & carers want to know. salivaryglandcancer.uk/get-involved/p… #salivaryglandcancer #acc #adenoidcysticcarcinoma @RobertLMetcalf about a month ago

What are the treatment options for metastatic disease or 'mets'? * When can be surgery be used? What about radiotherapy? When are drug treatments considered? * Many patients with Adenoid Cystic Carcinoma and other Salivary Gland Cancers have metastatic disease. Listen to our second podcast to understand more about the possible treatment options and when they might be used. * Created from the presentation and questions at one of our gatherings, addressing the things that patients and carers want to know. * Our next gathering is July 31st. Join us and come along? All links in our profile. #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer #salivarycancer #sgcuk #maxillectomy #rarecancer #cancerwarrior #rarecancers #accwarrior #accwarriors #cancerawareness #headandneckcancer #acc #mets #metastaticdisease about a month ago

Give yourself permission to… is a key message when dealing with stress, anxiety and feeling of being overwhelmed. It’s okay to feel angry, to feel depressed, anxious. It’s okay to cry. * Whatever you need to do to feel some relief, take it. * Anxiety and stress can feel overwhelming. It can affect your sleep, digestion, your immune system and so much more. How have you coped? How has stress manifested for you? * For some interesting insights and techniques on managing anxieties, listen to Dr Elaine Mayon-White’s video. Link in profile. about 2 months ago

RT @useMYdata: ‘Trust & transparency: GP Data for planning & research’ – The only patient focussed event on the GPDPR. All are welcome, ple… about 2 months ago

We are celebrating Carers Week! Sending a huge thank you to all those who care for and support patients with cancer, and all other illnesses, conditions and diseases. * . This year’s theme is ‘Make Caring Visible and Valued'. Join us in showing support for unpaid carers and help raise awareness of caring, carers and the challenges unpaid carers face. * Many carers are family members and that makes the emotional journey all the more challenging. As part of #carersweek we have been talking to carers and you will hear their story on our website - Link in profile. * If you’d like to help make some noise, like and share this post and follow us for more. about 2 months ago

RT @HeadNeckMD: Phase II results of ATRA for #ACC now available. Some stabilizing effect in prior VEGFR treated and low MYB expressers. Wai… about 2 months ago

At #ASCO2021: Average survival after recurrence for #adenoidcysticcarcinoma patients without NOTCH mutation approached 10 years demonstrating the challenges of how and when to perform surveillance scans. Study led by @RobertLMetcalf @TheChristieNHS #ACC #salivaryglandcancer about 2 months ago

New study led by @RobertLMetcalf @TheChristieNHS 120 UK patients with #adenoidcysticcarcinoma describes clinical outcomes with & without NOTCH gene mutation. Shows the importance of identifying new treatments for #ACC patients with NOTCH mutations #salivaryglandcancer #ASCO2021 about 2 months ago