Get Involved .

Come along to one of our network meetings. Donate tissue to the Biobank to help drive forward research. Fundraise for us. Contribute to a patient - researcher trial discussion day. There are lots of ways to get involved.

Join Our Network

Join the SGC UK network, and we’ll keep you up-to-date via email with all the latest events and news.

Donate to the Biobank

Donate a sample of your Salivary Gland Cancer tumour. Help drive forward research, and get your own tumour profiled.

Our Events

Our 2021 networking events or 'gatherings' will be held in virtually in January, April, July and October. We also have a series smaller events or 'mini zooms' helf throughout the year.

Donate and help our work

From supporting clinical trials to funding regular networking events, your donation can make a big difference to those living with salivary gland cancer.

Patient – Researcher Trial Discussions

The SGC UK network facilitates a unique collaboration between those living with ACC in the UK, and those researching this rare cancer.

Podcasts and Videos

Our podcasts and videos are created from recordings made at our events which allows us to capture all the points and questions raised by patients and carers at the meeting.

Delighted that Prof Arturo Sala is joining our Oct 9th gathering to talk about his @Oracle_Cancer funded work 'Understanding Adenoid Cystic Carcinoma: the role of MYB-regulated kinases'. [email protected] or DM to join us in person or via zoom #adenoidcysticcarcinoma twitter.com/SGCancerUK/sta… about 7 days ago

For those living with #adenoidcysticcarcinoma, life is different. How can we deal with associated 'social anxiety' when out with friends? In our short video @sevcancamirci learns techniques that can help us all salivaryglandcancer.uk/our-stories-vi… #salivaryglandcancer #socialanxiety #acc about 7 days ago

Are you ready to kick off your #20for20 challenge tomorrow? We are ready to cheer you on! Wonderful to see sign ups already. Please join in. Hoping for 20 people to raise £100 each over the next 3 months in anyway you want! justgiving.com/campaign/20for… #CancerDoesntStopForCovid about 7 days ago

RT @AyalaPharma: We are excited to be sharing two posters on #adenoidcysticcarcinoma at @myESMO on September 16: one with preliminary clini… about 10 days ago

Great to see this published @RobertLMetcalf @TheChristieNHS. You can see Dr Laura Feeney talk about this research at our gathering here: salivaryglandcancer.uk/get-involved/p… #adenoidcysticcarcinoma #salivaryglandcancer #realworldresearch twitter.com/ACCResearch1/s… about 11 days ago

RT @London_Em1: 'What do cancer patients & their carers want to know about cancer, Covid-19 & vaccines?' Pls complete & share widely our ne… about 13 days ago

Not be to missed #RAREsummit21 a key virtual event on the #RareDisease calendar 7 October 2021! A great lineup of speakers. Find out more and register now. @camraredisease. camraredisease.org/raresummit21 twitter.com/camraredisease… about 15 days ago

How can carers best support patients & family members, while also looking after themselves? Carers often put their own needs to one side, but there are ways to help & involve the whole family ow.ly/KvRA50G8cDJ #adenoidcysticcarcinoma #adenoidcystic #salivaryglandcancer about 15 days ago

RT @ACCResearch1: "Targeting Notch4 in Cancer: Molecular Mechanisms and Therapeutic Perspectives" "High expression of Notch4 was found to… about 17 days ago

RT @UCL_HNAC: Last few days to sign up our first all day event: A Day of Parotid Surgery Register: tinyurl.com/ucl-hnac-study @BAHNOOfficial… about 17 days ago

RT @ACCResearch1: "Long-Term Outcomes of Personalized Stereotactic Ablative Brachytherapy for Recurrent Head and Neck #AdenoidCysticCarcino… about 19 days ago

20 sit ups a day, bake 20 cakes, give up sugar for 20 days, run 20 miles in 20 days…have you chosen your #20for20 challenge yet? Sign up is open justgiving.com/campaign/20for… and the fun starts on 20 September #salivaryglandcancer #sgc #adenoidcysticcarcinoma #aciniccell #acc about 21 days ago

And we're open! Sign up for the #20for20 campaign at justgiving.com/campaign/20for…. Choose your own challenge (it can be anything atall! to do over 20 days) and start gathering sponsorship. Every little bit will help Salivary Gland Cancer UK and other #rarecancer charities about 24 days ago

Time to sign up for Oct 7th #RAREsummit21 Uniting patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. Sharing knowledge and experience, to help better diagnosis, treatment and support 👇 twitter.com/camraredisease… about 24 days ago

'European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the #ERN #EURACAN'. Collaboration, patient access to expert centres, consistency, registries & more please esmoopen.com/article/S2059-… about 29 days ago

RT @CCR_AACR: #AdenoidCysticCarcinoma is usually stable without chemotherapy but randomized trial by Kang et al shows that axitinib signifi… about 29 days ago

“I drink an awful lot of water” says Alison toasting the camera. Starting our new series of patient stories, she talks about how she managed to continue eating through 30 rounds of radiotherapy & much more salivaryglandcancer.uk/our-stories/al… #adenoidcysticcarcinoma #acc #salivaryglandcancer about a month ago

RT @RRobaina75: The Role of Particle Therapy in #AdenoidCysticCarcinoma and #MucosalMelanoma of the H&N. #particletherapy appears a viable… about a month ago

Are you up for a challenge? ONE MONTH TO GO until #20for20. #CancerDoesntStopForCovid. 20 charities supporting rare cancers working together. We are seeking 20 people to raise £100 over 20 days. Either by doing one activity every day or 20 different ones. Email or DM to join us about a month ago

Catch up in person or zoom at 1st London 'hybrid' gathering. Sat Oct 9th 2021. Agenda being finalised. EVERYONE welcome. Coffee & lunch on us. Bursaries available to help with costs of coming. Pic of May 2019 gathering. Email or DM to join #salivaryglandcancer #adenoidcystic about a month ago

RT @London_Em1: Fantastic to have @sakhurram present @SGCancerUK summer meeting, enabling #cancerpatient-#pathologist interaction & mutual… about 2 months ago

Thank you @MxBenSpiller. We're also on Easyfundraising, where you can donate everytime you shop online without it costing you a single penny! easyfundraising.org.uk/causes/salivgl…. All money goes directly to helping further research into, and support for, those affected by #salivaryglandcancer twitter.com/MxBenSpiller/s… about 2 months ago

Couldn't have said it any better @SarahBrigham. Massive thanks to @sakhurram and to all who came to our summer gathering. Now I know about 'splitters vs lumpers', grading and more. Looking fwd to more #pathologist #salivaryglandcancer patient interactions #adenoidcysticcarcinoma. twitter.com/SarahBrigham/s… about 2 months ago

Today we think of all those affected by #headandneckcancer. We think of the patients, the carers, the friends of patients. We thank the clinicians, allied health professionals and researchers, who are focussed on 'bettering' outcomes for patients. #salivaryglandcancer #WHNCD2021 about 2 months ago

Final call ..... email [email protected] or DM to join twitter.com/SGCancerUK/sta… about 2 months ago

Some #salivaryglandcancers such as #adenoidcysticcarcinoma like to metastasize, sometimes in our bones. What do want research to focus on for these bone mets? Early detection? Treatments? Prevention &/or treatment of complications? QoL & supportive care? Have your say here 👇 twitter.com/NCRI_partners/… about 2 months ago

Delighted we are going to have so many join us on July 31st. For anyone else that would like to join pls DM or email [email protected] twitter.com/SGCancerUK/sta… about 3 months ago

Summer gathering at 2-4.30pm. @sakhurram joins us to talk about diagnostic challenges & treatment impact. Time to catch up with others, share experiences, support & knowledge too. ALL welcome. Email or DM to join #acc #adenoidcysticcarcinoma #salivaryglandcancer #salivarycancer about 3 months ago

Fantastic to see patient-clinician collaboration in action. Patient co-authorship of these #salivaryglandcancer guidelines. twitter.com/accrf_org/stat… about 3 months ago

The @ACCRF updates are always a joy to read. Thank you for all the fantastic work twitter.com/accrf_org/stat… about 3 months ago